WE had the opportunity late this morning to visit with Dr. K. This particular meeting was important because it gave Dr. K more time to review the data that has been collected and make a determination as to what course of action we should take. Again, the purpose of this trip was to try to identify and pinpoint M's seizures in her brain and then hopefully move forward with the possibility of surgery/resection.
So, in meeting with the doc today we unfortunately were not able to get the news we were hoping for. In short, seizure activity is taking place on the right and left sides of the brain. Earlier it was thought that focus and attention should be placed on the left, but it appears that the right side not only seizes more frequently than thought, but can and does act independently. The left side also can and does act independently. And, the two sides can seize simultaneously.
Thus, in M's case, while surgery is not impossible, it is probably not an option at this time. The goal of any treatment that we do is focused on M getting better. With surgery, there is not clear and conclusive evidence that surgery would leave M better off. The doc felt that by doing surgery we would be merely exploring.
Moving forward...A great plus that we have enjoyed where we are at is that all the epileptologists and neurosurgeons gather weekly to review and share their opinions on different cases and patients. Dr. K mentioned that he would like to review the data collected more and would be seeking the opinion of the neurosurgeon and his other colleagues. While the Dr. K shared his thoughts, it is possible the others might see things slightly different which could open up another window. All this to say, we will be meeting with Dr. K and the neurosurgeon later today.
At this time M will start back on her seizure meds as the docs have collected enough data and want M to start feeling better and provide her with some reprieve on her seizures (12 total yesterday).
Please pray throughout the day as you are able for M. We want her health restored. We want to see an end for her. Pray for her spirit. Pray that we would have options and not feel that a door has been slammed shut.
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment