Praise the Lord, precious prayer warriors....
The good news is that she is now stable.
The bad news is that her brain is constantly seizing even when we don't see an outward manifestation. The goal was to calm her brain, allow it to rest, and start trying to manage her meds better. We thought that the rest part had been accomplished since she had almost made it 24 hours without a seizure. However, this afternoon and evening she has had three more seizures and has just had to take the rescue medication. The first one was before they had even made it on to I-35 from the hospital. She had another bad one about an hour later once they got home. Then, she had to step away from dinner to lay down and started to have another one similar to the scary one on Sunday. B was able to act fast and get the rescue meds in her and she seems somewhat stable at this point, but the EMU is on call if she has another.
We have emergency meds; as well as, new daily medications to "try" to see if we can obtain relief. The new Doctor is gathering all of her records, MRI's, and surgical notes from Jefferson, Mayo, Houston, etc., and then his team is going to outline an aggressive plan of action. They have got to find a methodology that can reduce or control these devastating seizures.
Since M's case is so rare and linked to an auto-immune disorder, they want to take a few weeks to ponder and then begin an aggressive course of Chemotherapy for the next year-plus to wipe out her immune system. The hope would be that this would allow for a reboot, if you will, and then perhaps her body would stop attacking itself (i.e., her brain).
With faith, I am asking for God to heal her now so we can avoid such aggressive treatment!
Please continue to lift her up; as well as, the docs as they search for answers and a solution.
You, dear friends, are appreciated and loved beyond what words can express!!
D (M's Mommy)
P.S....So many of you have asked if you can prepare a meal or provide a gift card. M is extremely limited as to what she can consume because of the additives, preservatives, and dyes....therefore, gift cards would be the best way to bless them (Kroger, Target, Walmart, Fuel, or Whole Foods). Okay, Starbucks for B...LOL!!
Again, our love and thanks for being so faithful in calling out to our Savior on M's behalf.