"I know that God won't give me more trouble than I can handle...
but sometimes I wish He wouldn't trust me so much."
-Mother Theresa

And He said unto me, "My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me."
2 Corinthians 12:9

Tuesday, August 23, 2016

Lucky 13


Well, my man, my prince, beat me to the punch!  I was supposed to have a short PTA meeting this morning as Miss P started her first day of kindergarten yesterday!!  However, the meeting turned in to 3 hrs.  Then, my incredible husband took me to a special 13th anniversary lunch!  On the way back, I fell asleep & finished about 20 min of the nap once we got back home!  Then, we had to leave to go get Miss P from her after school care!  As soon as we made it home, we made dinner, took showers, and now I’m able to post a Happy Anniversary message to world’s most incredible husband!!!

Yes, today we celebrated 13 years of marriage!!  Praise be to the Lord that he brought this man in to my life!!  There is no greater man on earth, in my opinion!  He has kept his vows when most men would have said it’s too hard.  He has sacrificed time at work, when my health called for him to be by me “in sickness!”  Though this could make us “poorer,” he has stood by my side!  My guess is that most men would not still be by the sides of their wives, yet he is still here!  I don’t get to be the “better” wife due to my health, or even Mom as reading and physical activity are triggers for my seizures!  Yet, he does it ALL!!!  He reads to Miss P, reads to me, makes dinner, makes her meals, yet still tries to balance work!!  Wow!!

I am so grateful the Lord brought this man in to my life!!  Thank you, Lord, for my prince, that has ridden in and rescued me!!



In Aggieland, getting to meet my new service dog's, half sister, Miss Rev!!

My rodeo clown & cowgirl at Family Camp!!
My Man, such a clown!!

Love my man!!





Sunday, October 25, 2015

What a difference a few more days make...


...and the weather!!


That is our best guess!!

I have had 13 seizures in three days!!  Six on my birthday.  Five the next day.  Two on Saturday!!  Thus, we truly wonder if the weather plays a role in the seizures, since Patricia came to town!!!

To have only five seizures in 28 days!!  Wow!!  Praise Jesus!!!

To then have 13 in three days (with 11 of those being in just two days)!!  Praise the Lord that I'm still alive!!  It is so taxing on my body, especially when I've gone so many days without a seizure!!  We are so grateful for each and every day without a seizure.  Yet, my ability to "come back" after one is decreased dramatically.  To then, have six in one day!!

We have seen a correlation in the past to the weather and just didn't want to admit it, yet, I think this proved it!!!  So, in the last seven days, I have had 16 seizures.  That's how many I had the entire month of August!!

Please pray that my body will adjust quickly and not be so responsive to the weather!!   Instead, may the Lord's healing rest upon my body!!  Please, Lord!!!

Thank you each for being such incredible prayer warriors!!

Finally, a sweet friend from B's home office shared this with me today, it is exactly what I needed:


Sunday, October 18, 2015

What a Difference a Day Makes...

As always, Praise Jesus Christ, first.  Princess has experienced her best month ever to date and never in our nearly 10 year journey has Princess experienced so few seizures.  It is getting nice to say it has been 20 days and only 1 seizure, or for the month of October she has only had 1 seizure.  Absolutely incredible!

Please continue to pray for her healing and Jesus' work in her life.  While we rejoice in the great news, we are also very quickly reminded that the days ahead will still be a long journey.  So while this month has been wonderful...really it has!  Just in the last 24 hours Princess has had 3 seizures.  A sobering reminder that we're not out of the woods, yet.

So thank you for staying in touch and thank you for continuing to pray!

Tuesday, October 13, 2015

Quick update...turned long!!

Just a quick update that I have only had one seizure in the month of October!!!  As well, the last 10 days of September, I only had three seizures!!! 

However, the first 2/3 of the month, I had 69 seizures.  Which means, it was my third worst month of the year.  However, it was the first 20 days that were yucky.  Then, we went back to the doc in CO and she recommended that I go back to exactly how I was in August.  That meant increasing my dose of one of the meds that I'm on...they say that it's harder to get off of these meds, approved by the FDA, than meth.  Thus, it will take about two years for me to get off of it and so I want to hurry!!  Yet, she had me go back to the dose I was on and stick with it for at least a month. 

As well, I had a UTI that wouldn't go away.  Thus, I had to do two rounds of antibiotics.  Two days after I got off of the antibiotics, the seizures backed off for me.  We read the Package Insert on the meds and they say to not take them if you have seizures.  Oops!!  We all learned something there!!! 

So, the truth is that in the last 22-23 days, I have only had 4 seizures!!  WOW!!  All Praise to the Father, our Lord Jesus Christ!!!  Now, do I feel normal or better or whatever the question might be?  I want to quote a teen from the Epilepsy Foundation, 'How do you answer the question, "How are you feeling" when you've forgotten what normal feels like?'




So, I may not remember what normal feels like.  I guess that can be good or bad.  I would love to say that I'm choosing to see the good in it.  However, I still have this image of what a perfect wife and mother are, and I'm not those things!  Ben was sweet last night in his encouragement to Pierson because she said she didn't want to go to school because one of the boys is mean to her.  He told her that we've all had someone be mean to us at school or work, yet that doesn't mean we quit.  He gave her the example of Mommy and you know how bad Mommy feels when she's having seizures, yet she doesn't quit, she relies on the Lord to be her strength.  She keeps loving us and doing things for us and because of this many more people are talking to Jesus!!  He had me in tears because I don't know of anyone that's talking to Jesus more. 

I haven't seen the good in this.  Other than the fact that our Congressman, John Ratcliffe, co-sponsored HR 1635, the Charlotte's Web Hemp Exemption Act.  This removes hemp from the Controlled Substances Act on a federal level.  We have 58 co-sponsors now (Praise the Lord) and need at least 100 for it to go to vote on the floor of the house.  Right now, it is in committee, which means it sits!!  As Paige Figi, Mom of Charlotte stated, "this bill needed to be approved yesterday!" 

Hemp and Marijuana are not the same thing and so many people are confused by this.  Let's take the species canine, you can have a dachshund, a rottweiler, a wolf, or a fox!!  Are you ever going to get a fox if you breed a rottweiler?  NO!!  Same with hemp and marijuana, they are of the same species, cannabaceae, yet they are different breeds!!  Hemp is very high in CBD and had less than .3%THC; whereas, marijuana has greater than 25% THC.  Clear difference.  The other thing we learned is that THC actually has to be heated in order for it to be psychoactive (the negative that we hear about marijuana)!!

So, if there are over 129 conditions that hemp/CBD help to treat, are you for it, as well?!  The problem is that during prohibition, it got thrown under the label of marijuana, rather than truly looking at the species vs. breed.

Interruption...clearly, this isn't a quick update anymore.... ; )

So, if you are for it, you can go to www.coalitionforaccessnow.org and send a letter to your congressman asking them to "co-sponsor" HR 1635 or call them.  You can add text to the form letter that they've written for you on the site and tell our story, if you feel so led.  If they will meet with you, please let me know and I'll do my best to be there and share an example and tell God's story!!

So, those that know me best, know that I'm a rule follower to a 'T!'  Thus, we need to make this a federal "rule" that hemp is no longer part of the Controlled Substances Act.  It can't even be in clinical studies because it's a controlled substance!!

We have seen so many benefits coming from a plant that God created....

Psalm 104:29-31
29 You hide Your face, they are dismayed;
You take away their spirit, they expire
And return to their dust.
30 You send forth Your Spirit, they are created;
And You renew the face of the ground.
31 Let the glory of the Lord endure forever;
Let the Lord be glad in His works;

Genesis 50:20-21
20 As for you, you meant evil against me, but God meant it for good in order to bring about this present result, to preserve many people alive. 21 So therefore, do not be afraid; I will provide for you and your little ones.” So he comforted them and spoke kindly to them.

Thus, many use THC for evil, yet God means it for good.  It is one of the only medications/plants that can help someone to get off of these yucky meds.  

So, this long update to say, please go to www.coalitionforaccessnow.org and you can either enter your e-mail, or you can print the letter and take it to your Congressman, or you can call your Congressman's office.  For those of you that are in District 4 or that just want to say thank you!  Please take the time to thank Congressman John Ratcliffe for supporting the Charlotte's Web Hemp Exemption Act (HR 1635)!!  His DC phone # is 202-225-6673 or his Rockwall office is 972-771-0100.  

Thank you all for bringing glory to the Lord through the healing of His children!!

Please continue to pray that I find my worth as a mother, wife, woman, etc.  As well, pray for many more seizure free days and many more days of being able to decrease the meds!!!  Thank you each for your precious interest in our family!!!




Friday, September 11, 2015

Anniversary Celebration


We got to celebrate our 12th Wedding anniversary a few weeks ago!!!  Ben wore the shirt that he was wearing when I first saw him and went, "when did he get so cute?"  I wore the shirt that I apparently wore to all of our Sunday date dinners through college!  The good thing is that we can still wear them, the bad thing is that we still have them 14+ years later!!!




We went to our favorite spot for dinner and learning that it was our anniversary, you can see above the gift they gave to us!!  It was so sweet!!!


I'm so blessed to be married to this man!!!

I praise the Lord for my Ephesians 5:22-33 Man:

Marriage Like Christ and the Church

Wives, be subject to your own husbands, as to the Lord. For the husband is the head of the wife, as Christ also is the head of the church, He Himself being the Savior of the body.  But as the church is subject to Christ, so also the wives ought to be to their husbands in everything.

 Husbands, love your wives, just as Christ also loved the church and gave Himself up for her, so that He might sanctify her, having cleansed her by the washing of water with the word, that He might present to Himself the church in all her glory, having no spot or wrinkle or any such thing; but that she would be holy and blameless.  So husbands ought also to love their own wives as their own bodies. He who loves his own wife loves himself;  for no one ever hated his own flesh, but nourishes and cherishes it, just as Christ also does the church,  because we are members of His body.  For this reason a man shall leave his father and mother and shall be joined to his wife, and the two shall become one flesh.  This mystery is great; but I am speaking with reference to Christ and the church.  Nevertheless, each individual among you also is to love his own wife even as himself, and the wife must see to it that she respects her husband.