And He said unto me, "My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me."
2 Corinthians 12:9

Thursday, July 19, 2018

#HealingForHaylie-Post 40

Haylie update - July 19

Haylie had her spinal tap this morning and she did great. They did labs today to check her levels and her hemoglobin came back at a 5. 😳😬. That is not good. I can’t believe how well she has done over the last 2 days with her level being so low. She had been complaining of headaches and was getting really tired so now we know why. The chemo she had last week is what caused her blood levels to drop so much. It is a known side effect that we were aware of, I just didn’t think it would drop so much, so quickly. It actually came at a good time so we can get her levels back up before she heads to camp on Sunday. They are giving her 2 units because she was so low, so she should feel much better after the transfusion. 

I am overjoyed that there was an available supply of B- blood today for her to be able to get the transfusion when she so badly needed it. Thank you to everyone that has donated blood to make this possible! May each of you be blessed!

I pray that the blood would bring health and healing to her body. I also pray for the person who donated the blood to help give my child life. I pray that they are blessed and feel the love and joy of the Lord today for their amazing gift.

#HealingForHaylie-Post 39

Haylie Update - July 18

The last 2 days have been really good. Haylie has been stronger and able to walk by herself around the house. She slept all night long for the first time since we started this process. It was like the first time she slept through the night as a newborn. I certainly needed the sleep. She typically gets up 3 times every night so uninterrupted sleep was golden.

We even got out of the house and made a trip to Chick-fil-a. It was a big day for us! Tomorrow we head back to the hospital for another round of chemo and a spinal tap. Please pray all goes well.

We are starting to get back in a more normal routine. However, for some reason I haven’t been able to update our dry erase calendar. It’s totally crazy, but I feel like we never got to finish May and start June. In my mind, it feels like we never even started June. Haylie was admitted to the ER and diagnosed on May 31. That is when it feels like everything normal stopped and chaos began. It may feel like chaos but I know God is still in control and has ordered our steps. When things seem overwhelming, I have to turn to scripture and read the truths that have been spoken over us. Fear is a liar, and I must not listen to it. I’ve been trying to figure out why I couldn’t erase the calendar. I have been wondering, “what are you trying to teach me now God?” I finally realized I can’t change the past and I can’t go back. The only thing I can do is go forward. In life, we all get to choose how we move forward. We can sit angry and in disbelief and miss all that life has for us, or we can pick ourselves up and choose to not just live, but to live with a new and better appreciation of things. Yes, this is a tough season of our life, but I know when we come out on the other side, we will be stronger, wiser and better people because of it. I’m learning to slow down and give more hugs and be thankful.

God has a purpose and a plan for all of us. I was laying here thinking of how thankful I am for all our doctors and the care and knowledge that they bring to us each day. I’m sure the road wasn’t always easy for them. Sure, they are amazing doctors now, but they have put years of hard work, long exhausting hours and dedication in to get there. Now, they are making such a difference in my family’s life by their expertise. They are like rockstars. Actually far better than rock stars because they are saving lives, and saving one of the most precious to me, my daughter.

Don’t doubt your ability to make a difference. Each of us has the ability to make life better. I want to encourage you that whatever your journey is, keep going. There will be tough times, but I encourage you to stick it out. God never said the journey would be easy, but He did promise to never leave us or forsake us. You may not be saving cancer kids lives, but I guarantee you are making a difference in a big way to someone. It may seem insignificant to you, but I guarantee someone is better today because of you. Don’t give up and don’t loose heart. God has something special planned for you too.

I finally just erased my calendar and put up July. I thought for a second I had completely missed June, but I realize almost every day of June is documented with journaling and pictures. I didn’t miss it. It didn’t go on without me. It was very different than what I would have planned, but I’m thankful we don’t always get to plan our steps. If we did I’m sure we would always choose the easy way and miss the character growth that we need. God has so much more for us. And yes, sometimes the training is hard, but wow, the reward will be amazing and so worth it. I saw the quote “Sometimes God will put a Goliath in your life, for you to find the David within you.”

Stand in faith like David, even when the odds seem totally against you. David came against Goliath, not by his strength, but in the name of the Lord Almighty. He believed God’s word over the circumstances surrounding him, and he was victorious.

I’m hoping to find the David within me.

Finally getting out of the house!

Snuggles with Peanut

Monday, July 16, 2018

#HealingForHaylie-Post 38

I’m a little late posting this because honestly I didn’t exactly know what to say. Our family was blown away by the love, generosity and support we received from our community on Friday night at the Haylie Geraci Pool Party! So many people to thank for making this such a fun and meaningful night for our family. Jessica Hawkins, thank you for organizing the whole pool party! Haylie was so excited to get out of the house for a bit and see so many of her friends at once. It made her whole week. She fell asleep with a smile on her face. 

Scott Ruth and Greg Fox, thank you for the amazing gift! It will go a long way in paying for medical bills. I feel terrible I didn’t say more that night, but for once I was speechless. It really took me by surprise. I wish I could have met Robyn. She seems like she was an amazing lady. Her legacy certainly lives on in her foundation. Thank you again to the Robyn Ruth foundation. You are doing amazing things and helping to make the world a better place. I certainly hope that we can one day return the favor.

Thank you to our whole community for once again showing up and loving on us. We are beyond blessed.


Saturday, July 14, 2018

#HealingForHaylie-Post 37

Haylie Update -July 13

It’s been a couple of days since my last update. Haylie is doing good. Really tired from the last round of chemo so she sleeps most of the day but overall doing good. I knew she was feeling much better today when she got her humor back and had me laughing all morning. I love to see her smile and hear her laugh.

Yesterday was our hospital chemo day. It was the first time she had her port accessed again since we had it put in last week. She was a little nervous because she is still so sore, but she did great. Each time they access it, it will be easier on her. I’m putting a few pictures of the port on here since I’ve had a lot of people asking what it looks like. It’s all new to me so I had the nurse show us what they look like outside the body. 

Today I was a lot nervous because I had to give her the first at home chemo shot by myself. 😬. She told me that I did great and was much better than she expected which is a good thing, I think.

We also got her wheelchair delivered yesterday so things will be much easier for both of us when we have to go somewhere. She will get her strength back soon, but right now she can’t walk far at all. It made it a real challenge going to the hospital because I couldn’t park in the parking garage because it was too far to walk. Needless to say, I got to know the valet guys pretty well. After they lost my keys the last time, they kept my car parked right up front this time. 😂. It was nice because it was ready to go when I got there!

Brennen is especially excited about the wheelchair and wants to take it on races around the block. So if anyone sees him in our neighborhood just smile and wave. 😂. He has been a trooper having to spend lots of time at the hospital and at home being my helper. It’s certainly not the summer we had planned, but I know God is still growing and strengthening us during this time. Someday we will look back on this year and we will see how far we have come, and how God was right there, every single step of the way.
This is the what the port looks like that was implanted under Haylie’s skin that the access needle connects to for chemo treatments. The white cord connects to a vein in her neck so the chemo is put right into her bloodstream.

This is the access needle that is put in each week for chemo.

Wednesday, July 11, 2018

#HealingForHaylie-Post 36

From Haylie's Mom, Melissa:
Love my church, our Pastor, Robert Morris and the amazing people who made this happen. I got an email from Carter blood care and they have the highest volume on hand that they have had in over 6 years! Over 1500 people donated blood! That is a lot of lives that will be saved. Thank you to everyone who donated. Let’s keep it up so no family ever has to worry about not having blood during a life threatening time of need.

Thank you to all those who gave blood so others could live. And thank you to FOX 4 News for covering this story!

Monday, July 9, 2018

#HealingForHaylie-Post 35

Haylie update - July 9

So thankful! We just finished up our 5th day in a row of chemo to start phase 2. This chemo was a little stronger and it has been harder on her. We are fortunate that she has not been nauseous until now. I’m hoping it will pass soon. It is hard because she still craves food and is hungry, but it all really upsets her stomach.

I’m so thankful that she got the needle out of her port today too. I was told with it accessed it had to stay completely covered under the plastic patch. If it got exposed to air, it would have to be taken out and re-accessed. We also couldn’t get it wet in any way, so we couldn’t take showers. The sticky tape around it kept coming up and made me nervous. I know I will sleep better tonight with it out. She had done remarkably well with it but we had a hard night last night and she said she could feel the needle and couldn’t get comfortable. 

I rejoice that we have 2 days of no hospital and no chemo. We have to go back in on Thurs for another treatment but we will enjoy tomorrow and Wednesday. She is so excited because she has not been able to take a real bath since we entered the hospital. She said she can’t wait to take a bubble bath tonight.

After this, we will only have to go back to the day hospital once a week. Yay! I was told that her levels will start coming down again soon and we will be home bound for a while to avoid infection. Not looking forward to that because she is just starting to feel a little better, but it is part of the process to kill all the cancer cells.

Overall today has been a good day, other than valet losing my car keys for 25 mins. 🤦🏼‍♀️. I really like the day hospital. I learned that you should avoid having outpatient procedures done over the weekend. I’m always going to request the day hospital over weekend outpatient for sure. It was a bit of a circus on Saturday and especially Sunday with almost no help. No one was even at admitting to check us in and lots of mistakes were made. I’m learning to pay very close attention to everything they give her and do. Always double check and ask questions! I have learned so much in a short period of time, but still feel rather clueless in the whole process.

I’m thankful for such an amazing support system to help me through this. I am truly blessed and strengthened by all the prayers we are getting from so many people. There is so much power in prayer.

One more positive thing to pass on, I received an email from Carter blood care today and he thanked us for all the blood drives that have been given in Haylie’s honor. He said that this is the highest blood levels they have had in 6 years! Amazing. Thank you to everyone who has donated blood and helped save a life!

Love you all.

Watching minions while getting her chemo

Done...on our way home!