"I know that God won't give me more trouble than I can handle...
but sometimes I wish He wouldn't trust me so much."
-Mother Theresa

And He said unto me, "My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me."
2 Corinthians 12:9

Thursday, January 12, 2017

What a difference Year Makes....

Greetings to all!  We had a very long hiatus with the blog.  This was not intentional by any means, and as a lot of things go, you start to get so focused on other things and then your to-do list gets back logged.  Thank you to the many that have journeyed with us through 2016.  It truly is hard to believe that we have not sent out a formal update since September of last year regarding Princess.  Therefore, I will proceed to give it a try and yet in a concise and easy to read manner.

Princess is doing well.  Not to read too much into that, we still do face seizures on a weekly basis.  The blessing has been rather than a daily occurrence, the seizures have backed off and allowed Princess to get some time with Critter (who's now in school) and as well time with me.  We have been very blessed to be on Charlotte's Web Hemp Oil and have literally seen daily a positive effect in the reduction of her seizures and it has been tremendous to experiences several days in a row without a seizure.

One particular victory we shared in was not being in a hospital in all of 2016.  This meant and is continuing to mean that in nearly two years we have not been hospitalized due to Princess' seizures.  Additionally, the monthly doctor visits are now quarterly, and they serve more as a check-in than anything else.  While this has all been great news, it doesn't mean that there have not been challenges along the way.  In doing the hemp oil, it has allowed us to slowly reduce the pharmaceuticals and means getting off her seizure meds.  This has certainly proved challenging and yet rewarding all the same time.

A particular analogy that Princess has come up with during this journey has been a great and fitting example.  While neither one of us has ever run a marathon (nor have the desire to ever do), she imagines that when you have trained and trained for a marathon, your body becomes conditioned to the rigors, toll, strain, and agony that your body goes through.  And in the end, all that training paid off and you become accustomed to the running that at some point your body doesn't flinch at mile 26. Now imagine it has been some years since you last ran your marathon and you awake one fine morning and decide to immediately go run a marathon.  Well, being that you have not run that distance for some time, your body is no longer prepared and you struggle in the run.

For Princess, days without seizures are rewarding and freeing; however, as we string more of those days together, it is the days with one or two seizures that suddenly become very difficult, challenging, and deflating.  So in the end, we are grateful for the results we are seeing, and yet, we still ask for your prayers as we journey on in faith down this long road.  Speaking of, this March will be 11 years that Princess has been dealing with this illness.

Keep in mind too, the more progress we make,
the harder the "fall" and so your encouragement is always greatly appreciated!

Overall, we are continuing to rely and trust in the Lord with His plan.  I am reminded of a message that I got to listen to again from our Pastor.  The message title was, "The Risk of Faith."  The main point of the message:  Sometimes we can be in God's will and still feel like the circumstances are against us.  Sometimes we can be doing exactly what God has called us to, and things just aren't working out for us.  And yet, maybe, just maybe, that is exactly God's plan.  You see, He has called us out onto the water.  He has called us to trust him and look solely at Him and not give in to the myriad distractions that try to take over.  And when we do, it isn't always perfect.  However, we can put our complete trust in Him because His very Word tells us that he is working a plan for you and for me.  And His plan is good!

So, please pray for our journey.  We are now in 2017 and it is another year.  Our focus for our family is to be used by God for His Kingdom.  We pray that Princess' journey will be a blessing to others and that lives, just like ours, will be changed for the better, with something that the Lord has created.  We are looking for each month, and each day to be better than before.

My new favorite pic (May 2016,), ISN'T SHE BEAUTIFUL!!!

  • Strength for Princess (this week has actually been a very tough week)
  • That our Journey could be a blessing and encouragement to someone
  • Safety as we continue our wean off all pharmaceuticals.  
  • Guidance and timing for direction

Sunday, September 11, 2016

September 11th

Today carries a different meaning for our family!  Though we celebrate the heroics of 9/11 and mourn the terrible loss of life, we also celebrate a life, one that was spared.  Why?  9/11 is the day the Lord used to teach me a lesson about faith!  Yes, September 11. 2006, ten years ago today, five years after the attacks on our nation, Satan tried to cause me doubt.  However, my hubby walked in faith!!  September 11, 2006, was the day that my man was diagnosed with the big “C” word, CANCER!!

The doc came in to recovery, while B was still under anesthesia and told me that my husband had cancer, but don’t worry, he’d be back before he woke up, to tell him!  Don’t worry?  Everyone I had ever known with cancer had died!  What do you mean, don’t worry?  So, I began sending out invitations to my pity party!  However, my man woke before the doc came back in to tell him.  He said, “well?”  How do you tell your 26 year old husband that he has cancer?  Somehow, I stumbled over the words and shared the news with him.  His response?  That’s where my faith journey begins…the first words out of his mouth were, “cool, that means I get to be a cancer survivor!!”

What?  Maybe you didn’t hear me properly?  You have a disease that has taken the life of everyone I’ve known with it!  That didn’t sway this man’s faith!  Not one bit!!  He saw the exciting journey ahead of him!  We have two friends that came to know the Lord through watching his journey.  His statement, “if that’s the only reason I had cancer, it was worth it!?”  What?  Yes, that is the man I am blessed to call my husband, a man that is more concerned about others and their life after they leave earth vs his, while here!! 

B has taught me so much on my own health journey!!  When I’m not feeling well, I think of what he endured and his outlook!!  Thus, my prayer is that God will be the hero of my health journey, just as he is clearly the hero of B’s!!! 

God is already the hero as I watch my hubby love me in spite of ten years of a medical trial and having to do just about everything for our family!!  He is truly living out Ephesians 5:25-33:

Husbands, love your wives, just as Christ also loved the church and gave Himself up for her, so that He might sanctify her, having cleansed her by the washing of water with the word, that He might present to Himself the church in all her glory, having no spot or wrinkle or any such thing; but that she would be holy and blameless. So husbands ought also to love their own wives as their own bodies. He who loves his own wife loves himself; for no one ever hated his own flesh, but nourishes and cherishes it, just as Christ also does the church, because we are members of His body.  For this reason a man shall leave his father and mother and shall be joined to his wife, and the two shall become one flesh. This mystery is great; but I am speaking with reference to Christ and the church. Nevertheless, each individual among you also is to love his own wife even as himself, and the wife must see to it that she respects her husband.

Thank you, Lord, for choosing this man for me, our family, and Your Glory!!!

Tuesday, August 23, 2016

Lucky 13

Well, my man, my prince, beat me to the punch!  I was supposed to have a short PTA meeting this morning as Miss P started her first day of kindergarten yesterday!!  However, the meeting turned in to 3 hrs.  Then, my incredible husband took me to a special 13th anniversary lunch!  On the way back, I fell asleep & finished about 20 min of the nap once we got back home!  Then, we had to leave to go get Miss P from her after school care!  As soon as we made it home, we made dinner, took showers, and now I’m able to post a Happy Anniversary message to world’s most incredible husband!!!

Yes, today we celebrated 13 years of marriage!!  Praise be to the Lord that he brought this man in to my life!!  There is no greater man on earth, in my opinion!  He has kept his vows when most men would have said it’s too hard.  He has sacrificed time at work, when my health called for him to be by me “in sickness!”  Though this could make us “poorer,” he has stood by my side!  My guess is that most men would not still be by the sides of their wives, yet he is still here!  I don’t get to be the “better” wife due to my health, or even Mom as reading and physical activity are triggers for my seizures!  Yet, he does it ALL!!!  He reads to Miss P, reads to me, makes dinner, makes her meals, yet still tries to balance work!!  Wow!!

I am so grateful the Lord brought this man in to my life!!  Thank you, Lord, for my prince, that has ridden in and rescued me!!

In Aggieland, getting to meet my new service dog's, half sister, Miss Rev!!

My rodeo clown & cowgirl at Family Camp!!
My Man, such a clown!!

Love my man!!