Tuesday, December 29, 2009
Sunday, December 20, 2009
I know this probably isn't as exciting for all of you as it is for me, but it was pure joy! Even my sweet hubby was excited for me. I thought it was only long enough on one side, but he had me try the other side, too! Sure enough, I can tuck it behind both ears!! So, thanks for sharing in my joy!!! It's the little things these days!!
p.s. I only had one seizure yesterday and B is getting better!!! Praise the Lord!!
Thursday, December 17, 2009
However, whatever this is has moved to the rest of his sinuses. He just feels yucky! He is still working so hard at work and at home! He is making every effort to still take care of me (I've had a few rough days) despite how awful he feels! He is such an amazing man! Please pray for his rapid healing and for blessings on him since he continues to take care of me when he is feeling so bad.
I love each of you for giving of your time to come & check up on us and then go to Our Father in prayer!! Bless You!!
Now, here is the note from Connor's Mommy:
Tuesday, December 8, 2009
YES!! You got it! Now, let's all Praise the Lord!! Today is the 3rd Anniversary of the day that the doc's told us that the most amazing man ever created (next to Jesus, of course) was cancer FREE!! Yes, Lord!! Today is the third anniversary of a day filled with much joy and relief.
December 8th, 2006, was the day we found out that B was cancer FREE!!! We continue to pray for his cancer to stay gone forever!! Please say a prayer praising the Lord for his healing and for continued protection!!
Here's a post from B's blog earlier in the year that links back to the day we found out he had cancer and his unbelievable response!
Here is a link to the original post three years ago today, proclaiming God's miraculous powers and B being cancer FREE!!
Whatever you are doing right now (I know, you're reading this, but anything else that is keeping you busy or otherwise focused), stop doing it, and just think about how amazing our Lord is....then, Praise HIM with me that HE is a God that heals and Praise HIM that He healed my most wonderful hubby!!!!
Thank you, Lord!!!!
B, I Love You with all of my heart and look forward to every single day of forever with you!!!! A thousand generations.....
Saturday, December 5, 2009
Thursday evening, M was in pain with her stomach burning and a very tight back. The night was very restless and early in the morning M was in extreme pain in her low back and stomach, bad enough that we put in a call to her doc to be seen ASAP.
After a brief description to the doc, it was determined to start fluids and keep an eye on M. Praise the Lord....the fluids worked. Blood-work determined that M was severely dehydrated and was very ketotic. What this meant is that while the diet has been effective in keeping M in ketosis (to treat the seizures) her ketone levels were too high and was most likely causing the issues we were seeing. While not definitively diagnosed, it is also thought that the low back pain is due to kidney stones.
By early Friday afternoon, she was better and has to focus on drinking plenty of fluids to flush out any kidney stones. While still not at a 100%, M is doing okay, but still feeling a little off. Hopefully, we can get a handle on things today as we put up Christmas decorations and can get M some much needed rest as she has had several restless nights and days!
We still do not know exactly why she had the lengthy seizure, but are glad that we have not experienced it again. Thank you for your prayers!
Wednesday, December 2, 2009
I will try to update more later....
Monday, November 30, 2009
Well, she is back in the hospital. Here is the update from my aunt (her husband's Mom):
So, keep it up prayer warriors! You are making a difference since my cousin (her hubby) was able to find a job close to home! Now, let's pray for healing and wisdom for the docs in the next steps they take...
Friday, November 27, 2009
Monday, November 23, 2009
Sunday, November 22, 2009
PLEASE remember the kids who are still fighting cancer and pray for their families anytime you can. We know of two little boys who are fighting tough battles right now with brain tumors. Please pray for Matt and Ryan. Love you all!!!The Oxford Family"
Saturday, November 21, 2009
November is Epilepsy Awareness Month
The challenge is to "Talk About It!" According to the Epilepsy Foundation, epilepsy is often suffered in silence. Before I was diagnosed, I would not have understood that. However, so many people have come out of the woodwork to talk about how they or a loved one also have epilepsy. So, wear your purple (the color for epilepsy awareness)! In the meantime, let's "talk about it!"
Here are some epilepsy tidbits that are shocking to learn:
* Epilepsy is defined as repeated seizures, which happen at any point in a person’s lifetime due to an inherited condition, an illness or a brain injury of any kind, or (as in my case) for no known reason--it is not contagious.
* Each year, some 50,000 Americans die from seizures and related causes, triggering more deaths annually than breast cancer.
* Three million Americans suffer from epilepsy--it is the third most common neurological disorder in the US after Alzheimer's (dementia) and stroke.
* While approaching an incidence of 2 percent of the population in general, the incidence of epilepsy in infants and kids is somewhere between 5 to 7 percent.
* More people have epilepsy than cerebral palsy, multiple sclerosis and Parkinson's disease combined.
* Epilepsy gets much less funding than stroke or dementia, and even less funding than Parkinson’s disease, which affects less than a quarter of the number of people who are affected with epilepsy.
* The high rate of head injuries in soldiers who have served in Iraq portends a wave of epilepsy equal to or worse than the one which occurred as a result of the Vietnam war.
If you go to the web site, www.LetsSayThanks.com you can pick out a thank you card and Xerox will print it and it will be sent to a soldier that is currently serving in Iraq . You can't pick out who gets it, but it will go to a member of the armed services.
It is FREE and it only takes a second.
Wouldn't it be wonderful if the soldiers received a bunch of these?
Please take the time to do this yourself and to pass it on for others to do. We can never say thank you enough!!!
Thanks for taking to time to support our military!
Thursday, November 19, 2009
Wednesday, November 18, 2009
I've learned that it's less important to pray for how we want the journey to end than it is to pray that we would "journey well." A friend of mine who is battling cancer said, "You can pray for healing for me if you feel led to, but my prayer for myself is that wherever God directs my journey, that I would journey well". To me, that says it all. If we are praying this way, then we are truly lined up with God's will.
I know that when we are faced with a scary prognosis, an unsure future or huge burden, we often times pray for God to remove the trial from our lives. We want him to fix the situation; remove the thorn from our side. How many times did I pray that for Connor? Instead of praying this way, maybe we should pray for God's grace to carry us through whatever lies ahead and that God would redeem the situation.
I know this is easier said than done. I was the first one down on my knees praying for Connor's healing. I don't think that God wants us to quit asking for the desires of our hearts, but He does want us to surrender to "His will be done."
So, as for me, when I pray for myself or others facing trials, I pray that we would journey well. God, carry me through this dark valley in such a way that would glorify you and redeem this situation.
"Out of much tribulation I bring forth a people for the GLORY of My Name. I am shaping you in the furnace of affliction that I may set My seal upon you and display in you My own identity. I desire that you be one with Me in all I have purposed, and as I move in the earth today to REDEEM the lost and deliver the captives, you are moving with Me whenever your soul and spirit are yielded to Me as an open channel of prayer in the Spirit." Frances J. Roberts
"Run in such a way as to get the prize. Everyone who competes in the games goes into strict training. They do it to get a crown that will not last; but we do it to get a crown that will last forever."
I Corinthians 9: 24, 25
Friday, November 6, 2009
I've learned to surrender what is most important to me.
As most of you know the week leading up to Connor's home-going was very stressful. His feeding tube had fallen out on July 4 and he was not getting any nutrients and he was severely dehydrated due to the fluids/food just flushing right through him into his colostomy bag. That whole week, we spent everyday at a hospital trying to fix the feeding tube, to no avail. On Thursday, July 9th, another feeding tube was placed in Connor's abdomen. (They did this without putting him to sleep and he handled it SO WELL). When we arrived home, we realized the new tube was leaking and this tube did not fix the problem.
Shortly after we realized this, I got a phone call from the doctor in regards to Connor's labwork. His red blood count and platelets were low again and he would have to go back to the hospital Friday for more blood and platelets. The doctor also informed me that his BUN level was extremely high, which meant Connor was dangerously dehydrated. If he started hallucinating or became non responsive, we should bring him into the ER as soon as possible.
At this point, I was so worn out. It didn't matter how hard I tried to fix these problems, to fix Connor, if God didn't choose to HEAL Connor, it was all in vain. I could only do so much. It was like running on a treadmill. I was spending all this energy and all this time, but I wasn't making any progress for Connor.
Outside on our patio, Mom, Tait and I prayed. We prayed that God would either heal Connor or take him home. We knew that we were not selfish enough to want to keep Connor here the way he was. If His ultimate plan was not to heal Connor, then we wanted God to relieve him from his suffering. We surrendered our precious Connor into God's Hands. We prayed for a sign. A couple of hours later, Connor became non-responsive and we called the ambulance, which led us to Children's at Legacy and Connor's last 24 hours..
It is so hard to relinquish what we love SO MUCH to God, back to our Father and Creator. We want to hold on with all we have to what we hold dear. It was so hard to let him go, yet we knew in our hearts it was right.
Just as my daughter, MacKenzie, (in her wisdom) read to Connor on his last day, we should surrender ourselves to his will. This is the verse MacKenzie read to Connor. When Jesus was in the Garden of Gethsemane waiting for the soldiers to come take him, he said to his Father in Heaven, "My Father, if it is possible, may this cup be taken from me. Yet not as I will, but as you will." Matthew 26: 39
Wednesday, November 4, 2009
It's the one year anniversary of the official head shaving party!!!
Here is the BEFORE picture on the way to the hospital:
Here is the AFTER picture, once everyone had their shot at cutting the ponytails off and B shaved it:
If you're so inclined, here is the video of B shaving it:
Also, here are some links to B's posts last year around the haircutting party and surgery:
Thank you all for being such amazing prayer warriors. I had over 2000 seizures last year. This year, I'm at about 850. So, there has been improvement. However, I am still having them. I had 150 in October, which is the most I've had since prior to being diagnosed. We don't really understand it, but we're relying on the Lord for HIS perfect healing!
Sunday, November 1, 2009
Here is the info, as provided by my aunt two weeks ago:
As well, they have three young kiddos and my cousin has had to quit his job because he was on the road all the time. So, he's had to find a new job. Please lift them up...
Saturday, October 31, 2009
My heart has learned many things.
I've learned that although God's grace is what spares us from disaster or loss, His Grace is poured out on us even more when we are not spared from the disaster or loss. I've seen several children spared from Connor's fate and yes, God's Grace spared them. But, I can tell you that if He has allowed you to go through the loss, He will sufficiently provide the Grace to go through it. How much more important is His Grace then.
I love this quote below from Dr. Alan Redpath.
"There is nothing-absolutely no circumstance, no trouble, no testing that can ever touch me until, first of all, it has gone past God and past Christ right through to me. If it has come that far, it has come with a great purpose which I may not understand at the moment. But as I refuse to become panicky, as I lift up my eyes to Him, and I accept it as coming from the throne of God for some great purpose of blessing to my own heart, no sorrow will ever disturb me, no trial will ever disarm me, no circumstance will cause me to fret, and I shall rest in the joy of what my Lord is. That is the rest of victory."
As his hand is on my life, I'm counting on God to bring me through even this to victory. I'm believing his Grace will revive me again.
"You, who have shown me great and severe troubles, shall revive me again, and bring me up again from the depths of the earth. You shall increase my greatness, and comfort me on every side." Psalm 71:20, 21
Please continue to pray for Carson Richardson, as they try to figure out what treatment to try for Carson next. They are looking for a miracle. Also, please pray for our Carson. He broke his arm yesterday at Mason's 4th birthday party! Happy Birthday Mason!
Wednesday, October 28, 2009
We are praying for miraculous healing, first. Then, for wisdom in how to move forward. Yesterday, I had eighteen seizures and today I've already had seven and it's only 11am. No more, please , Lord! The epilepsy diet they have me on out of Johns Hopkins has worked very well and I've been able to titrate down on my meds due to the great response to the diet. However, this last week has been yucky.
As if I've not said it enough, I'm so ready for healing! I want this over. At the same time, I want God to be glorified! He deserves to be the Hero of this story! So, how do we get there. Please pray for miraculous healing and for wisdom for us in the decisions we have to make...
Again, I can't begin to tell you how much I appreciate all of your prayers!
Monday, October 26, 2009
Anyway, we are asking for your prayers. When will this be over? When will these seizures go away? Today's sermon from Matt was on Waiting. Wow...What a hard thing to often do. But the main point was Waiting and being in God's will. The lesson came from 2 Samuel after Saul had been killed. It was now time for David to take his place on the throne over Jerusalem. But before David proceeded he inquired of the Lord first. "Shall I go up?" asks David. The Lord replies "Yes!" Next, David asks to where, and the Lord tells him exactly where. You see, David had plenty of times from the moment he was anointed king by Samuel to take his throne, and yet he waited until the Lord told him it was his time.
M has been waiting. She has been more than amazing at enduring. And yet with days and weeks like we have just experienced, the waiting gets somewhat tough. So please lift M up right now. Pray for her strength and endurance. Pray for our wisdom as we continue to work through each day on the diet and medication.
Tuesday, October 20, 2009
This is the e-mail I just received from Nate's Dad:
Praise God, Nate's MRI is clear and he is in remission. This is truly an awesome thing that God has done. Nate has been through so much, but keeps bouncing back thanks to our LORD. He will get MRIs every three months for the next two years. His cancer is aggressive and could pop back up at any time in the next five years, so continued prayers are critical. We are so very thankful for all of your prayers, and want everyone to know that we serve a very big God. God can take even the smallest percent of survival and perform a miracle. It has been a long road and will continue to be, but today we are victorious. Please continue to pray for the cancer to stay away and for him to recover physically with his walking, talkingan and cognitive skills. May God bless you all.
Monday, October 19, 2009
Friday, October 16, 2009
Saturday, October 10, 2009
Did I create the rhythm your heart makes?
Could you believe when your candle starts to fade?
I want to be the One that you believe
Could take it all away, take your heart away
Was I there for the worst of all your pain?
And was I there when your blue skies ran away?
Was I there when the rains were flooding you off your feet?
Those were My tears falling down for you, falling down for you
I'm the One that you've been looking for
I'm the One that you've been waiting for
I've had My eyes on you ever since you were born
I will love you after the rain falls down
I will love you after the sun goes out
I'll have My eyes on you after the world is no more"
I was listening to this song when I was running last Friday on Connor's birthday. I couldn't help but think of Connor. The words of this song "After the World" by Disciple just rang so true for me. God arranged for the light of Connor's first day. He created the rhythm that his heart made. He was there for Connor when the sun set on Connor's little life on earth and He'll be there for him when this world is no more.
I know that for all of us, God has a purpose. For some of us, we will have to live a long life to fulfill that purpose. For others, like Connor, our purpose doesn't require a long life.
In Sunday School, our teacher was talking about Jesus' purpose on earth. His ministry started at the age of 30 and he had about 3 1/2 years until his death on the cross and resurrection to complete his purpose on earth. He had to pack a whole life of ministry into 3 1/2 years. I never really thought about how much He accomplished in such a SHORT time.
Our teacher also mentioned how John the Baptist was always preparing the way for the Messiah in his messages to the crowds that followed his teachings. At one point, he introduced Jesus to the crowd of people and baptized Him. God spoke to the crowd at this time, announcing that Jesus was his son. Shortly after, John was imprisoned and executed. He had fulfilled his purpose of leading the way for Jesus.
When I think of Connor, I know that God fashioned him in my womb 9 years ago and He had a plan for him before time began. God had a plan and a purpose for Connor and he carried out his purpose in such an outstanding way. I can just imagine God saying to him, "You got your job done, so you get to come HOME early."
I ask myself today "How well am I carrying out His purpose in my life?" Will I have just a few short years to carry out my purpose or will I have a long life to pursue this? Either way, I want to do my job well, just like Connor.
Thursday, October 8, 2009
Update on Nate - 10/08/2009 - From Jackie (his Mom)
""Nate is having a great week. He has just gradually made improvements since his last visit with the doctor. We are thankful that he hasn't gotten the flu since Wes and Jake just got over a case of the flu. I disinfected all weekend and Nate, Luke and I lived downstairs away from Daddy and Jake. Anyway, we are thankful for his strength and joy right now and ask that you pray with us as we are about a week away from an MRI on October 19. We love you all!!!!""
Monday, October 5, 2009
As you might remember, last week, I had only three seizures in eight days!!! Praise Jesus! The energy I had was amazing and it felt great. In the last eight days, I have had 42. I'm only ten shy of how many I had the entire month of September and it's only October the 5th. Yes, I'm tired. It wears me out...However, I keep holding to the Word of the Lord, that this is for HIS glory.
I think back to John 9:32-33, that no one had ever been healed of blindness until Jesus healed that man. Glory be to Jesus!!! According to the docs, there is no other person in the world that has the same kind of epilepsy as me. Lovely, right? All of the surgeries they wanted to do, they can't because my seizures are so deep in my brain. None of the medications are working to make me seizure free. Even on the highest doses of meds, I averaged up to six per day. That is better than the 25 per day before meds. However, it's still a lot.
The Ketogenic diet is helping as I've been able to reduce my meds dramatically (a major goal of the diet as it works to actually heal the brain; therefore, decreasing the need for meds), but I am still having seizures. Last month was the best ever, I averaged 1.75 per day!!! The doctors have literally said they don't know what to do in this situation. They are just hoping to stumble upon the right answer.
However, my hope is in the LORD! He created me in my mother's womb and knew this would start in my life in March 2006. He also knows the day of completion!! Please, LORD, may it be soon!
I just beg of each of you, to believe with me, with us, that this is for HIS glory and that HIS glory will be revealed and revealed soon. Also, that it will be revealed through miraculous healing!!! May it be, LORD!!!
The Marketing Major in me, can't post without a picture:
Wednesday, September 30, 2009
Tuesday, September 29, 2009
This week was wonderful. I only had three seizures in eight days!!! I wish I could explain the energy that comes from not having seizures (not to mention the overall relief). I believe I've mentioned it before, but they found through EKG that each seizure puts the strain on my heart equivalent to that of running a marathon (now if only I had a marathon runner's body)!
Then, today happened...it is 11pm and I've already had six seizures today. I just don't get it. So, again, let's be praying for the miracle!!!
I've had the Lord reveal some amazing things to me this week and I hope you'll enjoy the lessons, too.
Anytime, I have read in the Bible about epilepsy or seizures, the reference is to someone being demon possessed:
While he was still approaching, the demon slammed him to the ground and threw him into a convulsion. But Jesus rebuked the unclean spirit, and healed the boy and gave him back to his father.
I have struggled with this as I know that I have the Holy Spirit in me. Therefore, there is no room for Satan or his demons. Yet, I could not figure out why in the world we have been walking this road for 3.5 years.
Through this journey, I was introduced (by e-mail) to a friend in California that had epilepsy most of her life. She was able to have surgery and is doing very well now. Praise the LORD!!! She has been a precious friend through all of this through encouraging cards, e-mails, etc. She came to Texas last week and we got to meet for the first time. Before they left, I pulled her aside and told her the one thing that bothers me most...that when epilepsy is mentioned in the Bible, the reference is to evil spirits. She agreed that she had similarly struggled. The prayer was for the Lord to reveal the purpose behind all of this.
I woke up the next morning and got in the Word! The title was Displaying God's Glory and this was the scripture:
“Neither this man nor his parents sinned,” said Jesus, “but this happened so that the work of God might be displayed in his life” (John 9:3, NIV).
Basically, Jesus’ disciples assumed it was the result of sin. Jesus quickly corrected their misunderstanding with the statement above from John 9:3. God’s intention to display his glory in this man was planned before the man was born.
No one had ever heard of a person who was born blind being given sight. So, when Jesus healed him, it would be clear that the miracle was something only God could do. The Pharisees questioned the miracle. The man himself was transformed. His life became a megaphone proclaiming what God can do.
God has a purpose for each one of us. Your whole life has been planned and prepared to be a series of opportunities for God’s work to be displayed.
Short comings and handicaps are all suitable circumstances for God’s power to be revealed in your life. Musical talents, academic ability, technical aptitude, creative potential when used for God are also ways God exhibits his glory through your life.
It's worth it to read the rest of John 9.
It was also a great week since the seizures were at an all time low. Then, I opened up my Quiet Time for today and the title was, "My Struggles are About Him."
So, it sure seems as if the Lord is trying to make a point to me over the last few days.
What about your struggles? Is there any chance, any possibility, that you have been selected to struggle for God’s glory? Have you “been granted for Christ’s sake, not only to believe in Him, but also to suffer for His sake” (Philippians 1:29)?
Here is a clue. Do your prayers seem to be unanswered? What you request and what you receive aren’t matching up? Don’t think God is not listening. Indeed he is. He may have higher plans.
Will you continue to pray with us that the Lord is made known through this and that HE is glorified?!!!
Sunday, September 27, 2009
Wednesday, September 23, 2009
"We are sorry we haven't sent an update sooner we have had several phone calls and realized we haven't sent an update since the latest prayer request. Nate did need a blood transfusion last week and we thought he was going to need another since his energy level did not increase. Wes took him to see the doctor on Friday and it was determined he did not need another transfusion, but is probably suffering from the side effects of brain radiation. His brain is swelling right now which is causing many issues. He is back on steroids in order to bring the swelling down. He is sleeping most of the time, and still having bowel issues. He is struggling to walk again and doesn't have enough energy to play. The doctors think this is what is to be expected for at least a few weeks. It is difficult to see Nate struggling so much again when he seemed to be feeling great for several weeks. Please continue to pray for him and all who love him and support us everyday. Wow, what we do without our family and friends? We love you all!"
Saturday, September 19, 2009
Though he was just the opening act, he was the reason we were there....
I figured I would spare you a bunch of "talking" on my part and let the pics do the talking!
We had a wonderful time and it's so special that he works for such an amazing company.