And He said unto me, "My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me."
2 Corinthians 12:9

Friday, July 8, 2011


Not of this blog, not of this story, but of this chapter...

We have said since early on in this story that we wanted God to be the hero of this story.  It is our prayer that that has been the case.  This is the link to the post we did in October of 2008 talking about God being the hero of this story!  Scroll to the bottom, past all of the pics to get to that part of the post.

I've wondered through all of this how in the world HE could perform a miracle of healing.  I definitely wanted it, but just didn't understand how HE would do it.  I guess that's the point, huh?

Trust in the Lord with all your heart;
Lean not on your own understanding.
In all your ways acknowledge HIM,
and He will direct your paths.
Proverbs 3:5-6

So, my last seizure was last Tuesday at 7:15pm!!!!!!  That means that as I type this, I have gone more than ten days without a seizure!!  Thank you, LORD, for your miraculous healing!!

For, lo, the winter is past,
the rain is over and gone;
the flowers appear on the earth;
the time of the singing of birds is come. 
Song of Solomon 2:11-12

The short version of the story is that I was having way too many seizures on Tuesday despite having taken two rescue meds.

*The doc said to hurry and get to the hospital.

*She started me on IV meds (which have always calmed the seizures, but I've still had what I refer to as auras-according to the docs, these are still seizures).  Every time that I have switched from IV meds to oral meds, the seizures come back full speed ahead (more than 3 a day is my average on meds).  On the diet alone (no meds), I was having around 1.5/day.  She felt there were a few more risky treatments we could look at in the future, but I had to be off the diet as they would interact.

*Last seizure was Tuesday at 7:15pm.

*My wonderful and super impressive doc said that if this didn't work, she didn't have anything else she could do...we were out of options.

*The next day we asked our doc if we could all pray together about what the next decision should be...this is when she prescribed sushi (a.k.a. getting off the Ketogenic Diet).

*I couldn't go home on IV meds and so our amazing compounding pharmacist out here worked for hours with the pharmacy at Baylor to create a version of the med that he thought I might absorb...

*I was on this for a few days (the lowest dose I've ever been on of this med) with no seizures.  I even forgot a dose my first night at home.

So ALL PRAISE TO GOD who is our Great Physician!!  He truly has performed a miracle and is continuing to answer many prayers.  We have done nothing, yet HE has healed me!!  We are claiming it and rejoicing in HIS healing!!!

This past weekend I was able to get to be a Mommy to our sweet little girl.  It was amazing!!!  Having my precious baby girl snuggle up in my arms...WOW!!!  When she has cried, I've been able to comfort her...

It has truly been an unbelievable week being able to bake different items (and eat them), make meals for B, NOT weigh my food, not worry about staying away from certain foods...I had Blue Bell Ice Cream and chocolate chip cookies for the first time in almost three years!!!!  So while there was some apprehension at first, maybe even a slight wondering if God had truly healed me, each day we keep putting our trust in God that He is in ultimate control and TODAY I have been healed!  ALL Praise to HIM!!!

We are so grateful for the many faithful prayer warriors that have helped us to fight this battle that has lasted five plus years!  Your prayers, emails, letters, and calls have meant so much to us and have encouraged us so much along the way.  We continue to praise the Lord for His sustaining strength and a perseverance that could only come from Him.

May HE always get the glory and be the hero of your story, too!!

Friday, July 1, 2011

Quick Update

The doc just left my room and I should be going home tonight.  My last seizure was at 7:15p the night that we arrived.  We usually have good seizure control on IV meds, but once I switch to the pills, not so much.  Thus, I would have to stay in the hospital so that I had access to the IV meds.
Well, the doc, our wonderful compounding pharmacist in Rockwall, and the pharmacy here at Baylor have made up a liquid version of the med in hopes that I will absorb it better than the pills and have seizure control.

ALL PRAISE TO JESUS, I have taken two doses and still no seizures.  I've almost gone three days without a seizure!!  Thank you, LORD!!!!  So, we are hopeful that I'm healed and that I'll be heading home today!

For whatever reason, we find that if I go more than a day without a seizure, I tend to get a pretty bad migraine.  It arrived yesterday.  So, prayers that it goes away quickly as I want to be able to spend time with little Miss P tonight without it being so painful!

Thank you all for being such faithful prayer warriors!  I know your cries to the Lord are such a sweet sound to HIS ears.  Lord willing, we won't be begging HIM for healing anymore, but praising HIM for HIS healing!!!