Well, I've been told that we're overdue for an update. So sorry. Things have been crazy!
B has been studying like crazy for some exams/certifications that he has to take for work. Having a wife in the hospital made it hard for him to work, much less, get in all of the studying that he needed to do for these exams. He has not once complained, but just continued to love me. Wow! What a man!
I am still having seizures. Did you read that? I said "seizure." It's been so hard for me to change the word from "episode" to "seizure." However, the doc told me that I need to get used to it because I have epilepsy and it's a fact of life.
I will try to catch y'all up on all that has happened over the last few weeks. However, I won't do it all in one post. I'll try over the next week or so to get it all on here.
As of today, I have started a new medication. I'm still on the other one, but I was at almost double the highest dose ever studied and I still had around 25 seizures over the weekend. The doc said that is unacceptable. So, he started the new med today. Apparently, the two ways to change seizure meds are:
1. Quickly: They hospitalize you and pull you off the med you are on very quickly and quickly add the new one, but there are a lot of risks, which is why you are hospitalized.
2. Slowly: You very slowly add the new med. Once you reach the dose you need, then you slowly titrate off of the old med.
The doc chose option #2. So, we're looking at about three months of med changing....
I am so far past exhausted right now. We want to rejoice the days that I don't have many seizures, but the truth is that I still feel pretty yucky even when I'm not having them. I feel like I'm stuck in a constant state of nausea, dizziness, etc. So, I'm so ready for this to be over...
Hopefully, the new meds will make a real difference.
Your prayers are all so very special to me. Thank you!!
*Short Term Disability was finally approved
*Long Term Disability was also approved
*That the seizures will end and I'll start to feel better quickly
*That we can get results with the lowest dose of meds possible
*That B will pass his test on Thursday with flying colors!! He deserves so much with all the sacrifices he has made for me through this.
4 days ago