Thank you for your continued prayers. First, thanks for praying for Critter. She is doing better and is hopefully on her way to a full-recovery from her double ear infection. We absolutely love the opportunity that technology has afforded us as we have been able to have multiple Skype sessions with her. Certainly, we miss her soooooo much, but having Skype enables us to "see" her and the same for her to "see" us. Praise the Lord!
We are in the hospital today for day 2 of monitoring. Yesterday ended up being a very long day with us checking-in to the hospital around 7a and then getting set up, introduced to new nurses, detailing an 8 year history with the staff, and then pausing to take a breath. Fortunately, and unfortunately, Princess did have 7 seizures yesterday. The good news is that the unit did capture most of the seizures and so it will be interesting to learn if these seizures were any different from what has already been thoroughly documented.
We are continually grateful for our dear friends that we have made that are here in Rochester. They have been such a blessing by getting us to the grocery store, taking us from the airport to the Clinic, from the Clinic to the hospital, and even one our newest friends braiding Princess' hair before the EEG leads were attached yesterday! What a blessing YOU have been! We have truly been blessed by your generosity and friendship.
While the tough cases come to Mayo, you really want to hope that every tough case gets a cure or fix. As we mentioned earlier, it is becoming more and more apparent that there may not be a "man-made" cure for Princess. That said, we did become frustrated this morning after our first visit with the rounding team and doctor when it was stated that Princess was having seizures and therefore, we need to increase her medicine. That was just about the extent of our visit this morning and so it has left us fairly frustrated for a good portion of the day. We want to feel like Mayo is fighting for Princess. That, yes, there might not be a fix, but we are going to try to figure something out.
Over the last few years, the time and attention that has been given has set a standard in the treatment here. So, it is hurtful when that message is not consistent. And again, that is what happened today. Please pray that tomorrow will be better. We're not too sure if we'll get the chance to be out of the hospital tomorrow or not, but we do want to make sure that the information the docs are getting is going to provide further insight to Princess' situation.
We'll keep posting and in the meantime, thanks for praying!
4 days ago