And He said unto me, "My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me."
2 Corinthians 12:9

Monday, June 4, 2018

#healingforHaylie-Post 1

This first post might be a bit long, so please forgive me.  However, I want for each of you to get all of the details that we are working with....

The Geraci family is a dear family to us.  We were in the same Life Group with them at church, we got to love on Melissa & the kiddos while Michael served our country, then they became our next door neighbors for a little bit!!!!  They no longer live in Rockwall & so we miss them, but these updates have been posted on fb and I thought I would share them with each of you since y'all have proven to be incredible prayer warriors.

May 30 at 8:14am ·
Please say a prayer for Haylie. She is having to miss her last 5th grade field trip picnic because she is having major stomach pains and has been for a while now. Her doctor thinks it could be her gall bladder. We are trying to get an appointment with Children’s Hospital asap.

May 30 at 7:28pm ·
Update on Haylie.
Thank you to everyone for your prayers and messages of support! We are so thankful that we were able to see the GI doctor at Children’s Hospital today. We were told that we couldn’t get an appointment until Oct 11 so getting in today was a real blessing! We were also able to get a sonogram done today after she started throwing up at the doctors office. The sonogram showed a very swollen liver and spleen. We are still awaiting the lab results from her blood tests but should get more answers from that tomorrow. They took 9 viles of blood, the absolute max they could take with her weight, so we better get some answers! It was a bit difficult and she was passing out since she hadn’t had anything to eat due to the sonogram. They also found that she has a virus that was causing the red bruise rash, fever and chills. Her gall bladder actually seems fine which is good news. She feels much better now than she did last night or this morning so we are thankful for that. We are optimistic that she will be able to make it to her 5th grade graduation on Friday.

May 31 at 2:41pm ·
Please say a prayer for Haylie again. The dr called and said her labs came back critical and instructed me to get to the ER right now. We just got here and got checked in. I don’t have many answers right now but they have been amazing here so I know we are in good hands.

June 1 at 12:48am ·
Update on Haylie
I’ve had so many people asking for an update so I figured this was the best way to get out.
Haylie has been diagnosed with leukemia. This is a really hard post to write. Currently her levels are extremely high and we are in the ICU. Right now we have more questions than we do answers.
It has been a really long hard day for us. As I look at the time, I realize this is now day 2 for us. By God grace, have made it through day 1. We have a long road ahead of us but are so thankful to have some answers as to why Haylie has been feeling so bad lately. We can now work on a solution. This diagnosis is not an easy one, but we serve a mighty God who is bigger than cancer. Right now we will take this one day at a time.
We have been so well taken care of so far at the hospital. I’m still processing everything and honestly I’m absolutely exhausted. We are so thankful for all the prayers and ask for you to continue to pray for us. This is so much bigger than I can handle so I’ve given it to God and He will go before us. We stand firm and I will praise Him even in the storm.
Haylie is so amazing. No words can describe how much I love this child. She is still so sweet and positive even during this very difficult time. She is a fighter and I know we will beat this.
We are a bit overwhelmed with things, so we ask you not to contact us directly right now. We have an amazing group of family and friends and we will be reaching out to you for support in the coming days. Please keep us in your prayers because we know the power of prayer. Love you all. I will try to post more updates when I get a chance.

 June 1 at 1:42pm ·
Update on Haylie #2
So much has happened in the last 12 hours I’m trying to figure out where to start. The doctors have identified which type of leukemia Haylie has, T-cell ALL. That is not what we were hoping for as it is the most aggressive and does not tend to respond to chemo as well as the others so she will require a very aggressive treatment. We will be required to stay in the hospital for the first month of treatment right now. They also found a large mass above Haylie’s heart which has brought some complications. We are so thankful that it has not affected her breathing. She just received a picc line to start the chemo. It was a little scary because of the location of the mass. They had to do it in radiology to get a clear picture and go around the mass. They were not able to put her under or use sedation because they were afraid the mass would block her airway. She did awesome! I knew she was tough but she is showing such strength right now.
She had a good night last night. Her white blood cell counts were dangerously high and kept climbing during the night, so she was watched very closely. Thankfully they have started going down with the treatment so we won’t have to do the emergency procedure. Praise God! We can feel the prayers! She just received a platelet transfusion because her platelets were also dangerously low. We are so thankful to be at an amazing hospital with doctors who are on top of her care.
I’ve always told Haylie that God has big plans for her and will use her in big and mighty ways. So this is chapter 1 of our story. We look forward to see how God will use Haylie and show Himself mighty. Day one and here comes the Son!

June 2 at 3:32pm ·
Update #3
Prayer warriors please lift Haylie up. I feel like we are in a spiritual battle right now and it can only be won on our knees.
I wrote that about 3:00am when she was struggling to get enough oxygen. It was a long night but God is faithful. Her oxygen alarm kept going off when her levels got low and we would have to wake her up to take deep breaths and reposition her. The nurse finally put her on oxygen when we couldn’t stay above 90%. She is doing much better now and we are currently at 98%! She is being pumped full of fluids to flush her system so she has to get up to go to the bathroom all the time. Sometimes we got up every 20 mins, once she made it 90 mins. We are getting good at unhooking the machines and rolling the IV pole to the bathroom. We got to see our nurse very regularly last night.
Haylie had a really rough time with muscle spasms in her legs around 9pm. She was kicking uncontrollably at times. The doctors couldn’t figure out a reason and ran blood tests to screen her levels which all came back ok. I finally called my parents who started to pray and finally the kicking stopped and she fell asleep. The nurse even said it had to be Jesus because it stopped the second they finished praying.
Ok...it is now 3:00pm and so much has happened again that I haven’t had time to post this. Huge praises! Today has been a great day with lots of victories. Her white blood count dropped from 385,000 yesterday to 177,000 this morning to 85,000 by mid morning. Since we are below 100,000 we got to transfer out of ICU!!! When we arrived at the ER her count was 270,000. The normal range is 4000-10,000.
We just got moved to our new room on the oncology floor. Doctors are amazed at how fast she is progressing. I’m not because we serve such a big God. Prayers are being answered!
We are overwhelmed by the love and support we are receiving. We have had many precious friends visiting us and bringing us food. Jamie King, Ashley Hartzog and my sister Stephanie, I might never be able to properly thank you for all you are doing for us. You have helped pick us up and helped carry us through.
Thank you for all the encouraging words and Facebook messages. I’m sorry I haven’t been able to respond to many texts or messages. Hopefully we will get some more rest in our new room and I can post updates more often. I’m posting a few pictures of our journey thus far.
Please keep praying, they are being answered.
On our way to get our picc line put in.

Family visiting!

Friend visiting!

Friend and Daddy!


BFF!!

Bustin’ out of ICU. Our nurses were great!

Finally getting some rest in our new room.

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