SURPRISE!!!

WARNING: Picture Overload!!

Since today is a day is a day that most people spend celebrating, I will finally make this overdue post about a special celebration that occurred in November! It was celebrating the life of a most amazing man...my hubby!!!

I need to start it with apologizing to our dear friend Steven that took all of the pictures. I was so excited to post about the party and kept begging for the pictures. He wanted them to be perfect and I kept rushing him. So, he made many sacrifices to get them to me quickly. Then, I started having a bunch of seizures and have struggled to accomplish much of anything! Thus, no post until today. So sorry.

Now, for the fun!!

This was a big year for my man...the big 3-0!! Yep, he's officially getting old.

We started the weekend with me getting B out of the house Friday afternoon. This gave his parents (who live in PA) time to sneak in and hide in the guest bedroom. When we got home, his Dad called to tell him Happy Birthday! Then, his Dad said, "I sure wish we could be there with you!" B agreed! Then out walked his parents from the other side of the house!! It was awesome! Such a fun surprise!

So, we all went to dinner that night to celebrate this great guy!

His little b-day cake!
Can't have too many candles since he's getting so old,
gotta worry about his lung capacity!

With his parents!!

My Sweet Mommy!

Me & My good lookin' man!!!

All of us together at dinner, celebrating him!!!

The next day, B was asked to be the Honored Hero for the Leukemia Lymphoma Society Clay Shoot. So, B, his Dad, & his buddy, L, all went out to "shoot some clay!!" B's Mom and I drove out to hear B speak at the lunch after the shoot. All the while, my Mom was back at our house working herself to death to make the evening perfect.

B & L teaching Miss R (my sweet friend's daughter) how to shoot clay!

B shootin'...

The Honored Hero (my hero), speaking at the lunch!
This is the shirt that he wore to every single chemo treatment!

So, once this was over, his Mom and I rushed back to the house where my Mom was working like crazy. We sent B & his Dad to go look at plane museums. They love stuff like this (me, not so much). So, he had no clue, he just thought it was part of the b-day weekend!

My hubby absolutely loves Taco Bell. I know, I probably shouldn't admit that. I actually tried to get Taco Bell to cater for his sake. Our guests might not have eaten much, but it would have made his day. Anyway, On The Border has been wonderful to us here. When the docs put me on this nutritional therapy, they worked hard to try to make some items on their menu work for me. So sweet!

Anyway, when we couldn't make Taco Bell work, On The Border came through with flying colors!! They catered the party and Miss Courtney from OTB was amazing. Mom went to get the food, but Miss Courtney wanted to come to the house and help. She was only required to have it ready for us. However, she came to the house and was here all night making sure that everyone was taken care of so that we could all focus on lovin' B and celebrating him! So, if you go to OTB in Rockwall, tell them you are there because you heard how amazing she is!!!

Here are the pics from the party:


Isn't this cake amazing? A friend of mine from high school, Tracy Green, made this. This is her website so that you can all order a cake from her! We were all so impressed! It apparently tasted amazing, too!!

All the kiddos that were at the party.
We used our extra room as a playroom.
Miss R, that B taught to shoot earlier in the day,
was awesome and helped watch all of the kiddos!!

Ben's favorite cake is a cookie cake!
So, his parents got him a cookie cake, too!

This is L, that went to the LLS Clay Shoot with B,w/ his little girl.
We couldn't have pulled off the surprise without him.

Get ready....here comes the b-day boy...

He's figuring out that something is up...

"Whoa...there are a lot of people in my house!!!"

Everyone is here for you, B!!

SURPRISE!!!!!

This is Cancer FREE Nate!!!
This is the little guy that you've all been praying for,
that is now in remission!!
Can I hear a Praise Jesus!?!

I think he's enjoying his surprise b-day!!

My Mom, B, and behind them is my friend, K, Miss R's Mommy!

The best lookin' b-day guy ever!

Mom & Miss Courtney from OTB!!!
These two women worked harder than anyone that night!!!

Sweet friendships were created that evening!

This was the first time she's let a dog love on her in a while
& Hank gave her all kinds of kisses!!

B's Ol' Lady (roomie in the Corps), R!

It was so fun getting to celebrate this man!!!

Thank you so much to everyone that made his day so special!! I feel so blessed to have him here by my side, my cancer survivor and just all around unbelievable hubby!!!

Christmas Note from Connor's Mommy

Friday, December 25, 2009

As Christmas approaches, I'm filled with mixed emotions. My family is joyously celebrating our Savior's birth and gratefully counting our blessings. As my heart sings in response to this wonderful time of celebration, it also aches for the one gift I want most and won't receive this Christmas - my Connor back with us healthy and whole. I feel like the spoiled child who says "If I can't have that, then I don't want anything at all." So, I approach this Christmas with trepidation. I'm not sure how we will get through the next few days, but I'm counting on God to get us through. A couple weeks ago, Connor's Third Grade Class dedicated their Christmas choir performance to Connor. They also recited this poem "My First Christmas in Heaven" during the performance. Tonight, the kids and I talked about how Connor can wish Jesus a "Happy Birthday" in person this year. As we look back on 2009, we remember other family members who will be spending their first Christmas in Heaven, too. We will miss Papa Burt, Grandma Mann, Uncle Al and Aunt Loretta. I'm sure they are all having quite a celebration My First Christmas in Heaven I see the countless Christmas trees around the world below With tiny lights, like Heaven's stars, reflecting on the snow The sight is so spectacular, please wipe away the tear For I am spending Christmas with Jesus Christ this year. I hear the many Christmas songs that people hold so dear But the sounds of music can't compare with the Christmas choir up here. I have no words to tell you, the joy their voices bring, For it is beyond description, to hear the angels sing. I know how much you miss me, I see the pain inside your heart. But I am not so far away, We really aren't apart. So be happy for me, dear ones, You know I hold you dear. And be glad I'm spending Christmas with Jesus Christ this year. I sent you each a special gift, from my heavenly home above. I sent you each a memory of my undying love. After all, love is a gift more precious than pure gold. was always most important the stories Jesus told. Please love and keep each other, my Father said to do. I can't count the blessing or love has for each of you. So have a Merry Christmas and Wipe away that tear Remember, I am spending Christmas with Jesus Christ this year Please pray for us and the other families who have lost loved ones this year, like the Ledbetter and May family. Also, please pray for my cousin, Missy. She has cystic fibrosis and is 35 years old. She's in the hospital and not doing well at all. They are not sure if she will pull through this time. Always believing, Joy Cruse

Exciting News!!

This will be quick and I'm sorry I don't have any pictures to accompany it. However, last night as we were getting ready for bed, I discovered something very exciting!! I can tuck my hair behind my ears!! Yep! It's growing!! Finally!!! Yippee!!!

I know this probably isn't as exciting for all of you as it is for me, but it was pure joy! Even my sweet hubby was excited for me. I thought it was only long enough on one side, but he had me try the other side, too! Sure enough, I can tuck it behind both ears!! So, thanks for sharing in my joy!!! It's the little things these days!!

p.s. I only had one seizure yesterday and B is getting better!!! Praise the Lord!!

Quick note on my hubby & then from Connor's Mommy

May I ask each of you (you unbelievable prayer warriors) to stop for a quick moment and pray for my amazing hubby? This is the man that sacrifices so much on a daily basis to serve me when I'm not feeling well, and even when I am! ; ) He started to get a sore throat on Tuesday. He immediately started pumping his body with Vitamin C. Mom gave him some Tea Tree Oil for his throat and it cleared up quickly! Thank you, Jesus!
However, whatever this is has moved to the rest of his sinuses. He just feels yucky! He is still working so hard at work and at home! He is making every effort to still take care of me (I've had a few rough days) despite how awful he feels! He is such an amazing man! Please pray for his rapid healing and for blessings on him since he continues to take care of me when he is feeling so bad.

I love each of you for giving of your time to come & check up on us and then go to Our Father in prayer!! Bless You!!

Now, here is the note from Connor's Mommy:

Thursday, December 17, 2009

"Jesus wept." John 11:35 Such a short simple verse, yet there is so much meaning hidden in those two words. After Lazarus died, Jesus came to his tomb. Mary (Lazarus' sister) was weeping. "When Jesus saw her weeping, and the Jews who had come along with her also weeping, he was deeply moved in spirit and troubled." (v. 33) And in Verse 35, Jesus wept. It seems simple enough, right? What's so significant about that? It's the shortest verse in the Bible, and perhaps the most profound. He wept for their suffering, for Lazarus's pain, for the sorrow and heartache of the moment. He entered their agony and suffering, and experienced it personally. Jesus wept. Imagine that you were reading this blog from your home in a remote country completely at peace and totally secure. Your homeland is immune from the economic turmoil of these times. Its enemies cannot attack its borders. Its residents commit no crimes; its land suffers no disasters. There is no pain and sorrow. Would you leave such a home at peace for a world at war? Knowing you would be rejected by the people you came to help, abandoned by your friends and executed by your enemies? Would you come to this place, where you would experience grief, pain and sorrow along with the rest of us? Honestly, I don't think I would. This is the story of Christmas. Of all the names for the Baby of Bethlehem, my favorite is the one Isaiah gave him seven centuries before his birth: "Immanuel," which means "God with us" (Isaiah 7:14; Matthew 1:22-23). One of the earliest hymns in praise of Jesus says that he, "being in very nature God, did not consider equality with God something to be grasped, but made himself nothing, taking the very nature of a servant, being made in human likeness. And being found in appearance as a man, he humbled himself and became obedient to death-even death on a cross" (Philippians 2:6-8). The next time you feel stressed and frustrated and alone, remember that your Savior walks with you through your darkest days and longest nights. He is with you always, to the very end of the age (Matt. 28:20). You could not come to him, so He came to you. He loves you so much that he considered your life worth His death. The King who chose to be born in a cow stall chooses to live in your heart. This is the "gospel," the "good news" of Christmas. On a day (or year) of bad news, it's the best news of all. Thanks, James Denison, for your sharing this perspective on Christmas. Always believing, Joy Cruse

Anyone Know What Today Is?

Anyone?


Guess again...


YES!! You got it! Now, let's all Praise the Lord!! Today is the 3rd Anniversary of the day that the doc's told us that the most amazing man ever created (next to Jesus, of course) was cancer FREE!! Yes, Lord!! Today is the third anniversary of a day filled with much joy and relief.

December 8th, 2006, was the day we found out that B was cancer FREE!!! We continue to pray for his cancer to stay gone forever!! Please say a prayer praising the Lord for his healing and for continued protection!!

This was the first picture taken once we got the news!!

Here's a post from B's blog earlier in the year that links back to the day we found out he had cancer and his unbelievable response!

Here is a link to the original post three years ago today, proclaiming God's miraculous powers and B being cancer FREE!!

Whatever you are doing right now (I know, you're reading this, but anything else that is keeping you busy or otherwise focused), stop doing it, and just think about how amazing our Lord is....then, Praise HIM with me that HE is a God that heals and Praise HIM that He healed my most wonderful hubby!!!!

Thank you, Lord!!!!

B, I Love You with all of my heart and look forward to every single day of forever with you!!!! A thousand generations.....

Update

To all of you....Thank you for your faithful prayers and encouraging notes! We spent the majority of Thursday trying to connect with the many physicians that have been connected in this process. It was finally the afternoon of Thursday that we were able to get M into one of the docs to get her blood-work done. Still no answers, but no more lengthy seizures...

Thursday evening, M was in pain with her stomach burning and a very tight back. The night was very restless and early in the morning M was in extreme pain in her low back and stomach, bad enough that we put in a call to her doc to be seen ASAP.

After a brief description to the doc, it was determined to start fluids and keep an eye on M. Praise the Lord....the fluids worked. Blood-work determined that M was severely dehydrated and was very ketotic. What this meant is that while the diet has been effective in keeping M in ketosis (to treat the seizures) her ketone levels were too high and was most likely causing the issues we were seeing. While not definitively diagnosed, it is also thought that the low back pain is due to kidney stones.

By early Friday afternoon, she was better and has to focus on drinking plenty of fluids to flush out any kidney stones. While still not at a 100%, M is doing okay, but still feeling a little off. Hopefully, we can get a handle on things today as we put up Christmas decorations and can get M some much needed rest as she has had several restless nights and days!

We still do not know exactly why she had the lengthy seizure, but are glad that we have not experienced it again. Thank you for your prayers!

20 minutes

Precious, Precious Prayer Warriors: Red Alert....Please pray for M as we experienced something we have not yet experienced through this entire ordeal. Tonight at 6:10, M had a seizure (number 3 for the day) that lasted 20 plus minutes. This was and is continuing to be a very shocking and scary moment. we are now 3 hours past but M is still continuing to feel like she is in a constant state of having a seizure. So, please pray with us that she would be healed and set free from these seizures. Pray for our wisdom as to whether or not we go to the hospital, pray for the docs that we may come in contact with.

I will try to update more later....

Thank YOU!!!

More Prayers for My Cousin

Remember at the beginning of the month when I posted about my cousin's health?

Well, she is back in the hospital. Here is the update from my aunt (her husband's Mom):

Update on S- she is back in the hospital with an infection at her port site. She is running 101 fever and the doctor has decided to take the port out for two days, give her mega doses of antibiotic, and then put a temporary one back in. They are talking about putting a fistula in her arm, which is made by joining an artery to a vein which would increase the blood flow and will be easier to insert the large needles for her dialysis treatments, or make a graft in her arm which is man made (a tube will be inserted to connect an artery to a vein for the dialysis). The fistula could take up to 6 months to mature enough to be used for dialysis, but the graft will only take about a month to heal and be ready.

They are doing blood cultures every few hours, and also lung x-rays or scans to make sure her lungs have not been compromised by the disease. All of this is, of course, to monitor the progression of the disease.

Praise report! Her husband, S, found a local job and is home every evening to prepare dinner for her and the kids. We are praising God for that answered prayer. Her disability is in affect and she has already received her first check and will get one the 3rd of every month from now on.

This is where she stands right now. Dr. says she will be there at least a week. Her spirits are pretty good though and she says she is very grateful to be doing as well as she is and always tells me to thank everyone for their prayers.

So, keep it up prayer warriors! You are making a difference since my cousin (her hubby) was able to find a job close to home! Now, let's pray for healing and wisdom for the docs in the next steps they take...

A Judeo-Christian Nation

Click on this link:

A Judeo-Christian Nation

What's worse?

From Connor's Mommy:

Monday, November 23, 2009

Before Connor passed and even after, I felt like there could be nothing worse than losing a child. I've had many people tell me they feel the same way, and I have to admit that I can't imagine worse grief than this. It is heart-wrenching and we cannot get through this without God's Grace. That being said, I have changed my mind. I believe there is something worse... spending a life/eternity without knowing God. I can't imagine facing the trials of this world without the peace, strength and comfort only He can provide. What would life be like without His promise for a hope and future? Jeremiah 29:11 Like anyone who suffers loss, I would love to reverse my situation and bring my Connor back. In fact, Carson and Mason were just talking about that in the car last week. Mason said we should just buy Connor back. How I wish it were that simple. We even talked about what we would do if we had Connor back for a day. That was fun daydreaming. But, we are deceived by our longings for what we once had, because we cannot have it that way forever, even if we regain what we lost for just a little while. I have come to realize that the greatest enemy we face is death itself, which claims everyone and everything. No miracle can ultimately save us from it. A miracle is therefore only a temporary solution. We really need more than a miracle - we need a resurrection to make life eternally new. We long for a life in which death is finally and ultimately defeated. Thank you, God, that death does not have the final word; life does. Jesus' death and resurrection made it possible. He now has the authority to give life to those who want and need it. In the New Testament, there are countless stories of Jesus performing miracles; healing many people. But, eventually, all those people still faced death. In other words, Jesus' miracles were not the ultimate reason for His coming. His great victory was not His miracles, but His resurrection. Jesus guarantees that the last chapter of the human story is not death, but life. All tears and pain and sorrow will be swallowed up in everlasting life and pure, inextinguishable joy. This Thanksgiving, I'm thankful for that beautiful gift. Even though I feel the pain of my present circumstances, which reminds me of what I have lost; yet I can still hope for future victory and a future spent with Him (and Connor). "Overwhelming victory is ours through Christ who loved us enough to die for us. For I am convinced that nothing can ever separate us from His love." Romans 8:37-38 Here are the words from Chris Tomlin's "I will rise", which was sung at Connor's service. There's a peace I've come to know Though my heart and flesh may fail There's an anchor for my soul I can say "It is well" There's a day that's drawing near When this darkness breaks to light And the shadows disappear And my faith shall be my eyes Jesus has overcome And the grave is overwhelmed The victory is won He is risen from the dead [Chorus:] And I will rise when He calls my name No more sorrow, no more pain I will rise on eagles' wings Before my God fall on my knees And rise I will rise And I hear the voice of many angels sing, "Worthy is the Lamb" And I hear the cry of every longing heart, "Worthy is the Lamb" Always believing, Joy

From Nate's Mommy

"I thought I would send a quick update on Nate, since many have asked how he is doing. The answer is great. He is continuing to get stronger everyday. He still uses his walker, but is starting to take steps. He feels great most days. We are all enjoying less trips to Children's. We are excited that Nate's wish was granted and we will be going to Disney World next month thanks to Make A Wish. We are thanking God that this December will be much better than last year as Nate was diagnosed last year on Dec. 20 and well, you all know the rest of the story. We are prayinig for continued healing and trying to learn about what life might look like for Nate as he grows. We wish you all a Happy Thanksgiving! Your prayers and love have carried us over the past year. We are so very thankful to you all.

PLEASE remember the kids who are still fighting cancer and pray for their families anytime you can. We know of two little boys who are fighting tough battles right now with brain tumors. Please pray for Matt and Ryan. Love you all!!!The Oxford Family"

November is Epilepsy Awareness Month

November is Epilepsy Awareness Month

The challenge is to "Talk About It!" According to the Epilepsy Foundation, epilepsy is often suffered in silence. Before I was diagnosed, I would not have understood that. However, so many people have come out of the woodwork to talk about how they or a loved one also have epilepsy. So, wear your purple (the color for epilepsy awareness)! In the meantime, let's "talk about it!"

Here are some epilepsy tidbits that are shocking to learn:

* Epilepsy is defined as repeated seizures, which happen at any point in a person’s lifetime due to an inherited condition, an illness or a brain injury of any kind, or (as in my case) for no known reason--it is not contagious.

* Each year, some 50,000 Americans die from seizures and related causes, triggering more deaths annually than breast cancer.

* Three million Americans suffer from epilepsy--it is the third most common neurological disorder in the US after Alzheimer's (dementia) and stroke.

* While approaching an incidence of 2 percent of the population in general, the incidence of epilepsy in infants and kids is somewhere between 5 to 7 percent.

* More people have epilepsy than cerebral palsy, multiple sclerosis and Parkinson's disease combined.

* Epilepsy gets much less funding than stroke or dementia, and even less funding than Parkinson’s disease, which affects less than a quarter of the number of people who are affected with epilepsy.

* The high rate of head injuries in soldiers who have served in Iraq portends a wave of epilepsy equal to or worse than the one which occurred as a result of the Vietnam war.

Let's Say Thanks!!!

XEROX IS DOING SOMETHING VERY SPECIAL! You CAN, too!!

If you go to the web site, www.LetsSayThanks.com you can pick out a thank you card and Xerox will print it and it will be sent to a soldier that is currently serving in Iraq . You can't pick out who gets it, but it will go to a member of the armed services.

It is FREE and it only takes a second.

Wouldn't it be wonderful if the soldiers received a bunch of these?

Please take the time to do this yourself and to pass it on for others to do. We can never say thank you enough!!!

Thanks for taking to time to support our military!

From Connor's Mommy

What an encouraging word from Connor's Mommy:

Wednesday, November 18, 2009

I've learned that it's less important to pray for how we want the journey to end than it is to pray that we would "journey well." A friend of mine who is battling cancer said, "You can pray for healing for me if you feel led to, but my prayer for myself is that wherever God directs my journey, that I would journey well". To me, that says it all. If we are praying this way, then we are truly lined up with God's will.

I know that when we are faced with a scary prognosis, an unsure future or huge burden, we often times pray for God to remove the trial from our lives. We want him to fix the situation; remove the thorn from our side. How many times did I pray that for Connor? Instead of praying this way, maybe we should pray for God's grace to carry us through whatever lies ahead and that God would redeem the situation.

I know this is easier said than done. I was the first one down on my knees praying for Connor's healing. I don't think that God wants us to quit asking for the desires of our hearts, but He does want us to surrender to "His will be done."

So, as for me, when I pray for myself or others facing trials, I pray that we would journey well. God, carry me through this dark valley in such a way that would glorify you and redeem this situation.

"Out of much tribulation I bring forth a people for the GLORY of My Name. I am shaping you in the furnace of affliction that I may set My seal upon you and display in you My own identity. I desire that you be one with Me in all I have purposed, and as I move in the earth today to REDEEM the lost and deliver the captives, you are moving with Me whenever your soul and spirit are yielded to Me as an open channel of prayer in the Spirit." Frances J. Roberts

"Run in such a way as to get the prize. Everyone who competes in the games goes into strict training. They do it to get a crown that will not last; but we do it to get a crown that will last forever."
I Corinthians 9: 24, 25

Always Believing,
Joy

From Connor's Mommy

Last week I mentioned how my heart had been stretched to learn new lessons. This week, I want to mention something else I've learned.

I've learned to surrender what is most important to me.

As most of you know the week leading up to Connor's home-going was very stressful. His feeding tube had fallen out on July 4 and he was not getting any nutrients and he was severely dehydrated due to the fluids/food just flushing right through him into his colostomy bag. That whole week, we spent everyday at a hospital trying to fix the feeding tube, to no avail. On Thursday, July 9th, another feeding tube was placed in Connor's abdomen. (They did this without putting him to sleep and he handled it SO WELL). When we arrived home, we realized the new tube was leaking and this tube did not fix the problem.

Shortly after we realized this, I got a phone call from the doctor in regards to Connor's labwork. His red blood count and platelets were low again and he would have to go back to the hospital Friday for more blood and platelets. The doctor also informed me that his BUN level was extremely high, which meant Connor was dangerously dehydrated. If he started hallucinating or became non responsive, we should bring him into the ER as soon as possible.

At this point, I was so worn out. It didn't matter how hard I tried to fix these problems, to fix Connor, if God didn't choose to HEAL Connor, it was all in vain. I could only do so much. It was like running on a treadmill. I was spending all this energy and all this time, but I wasn't making any progress for Connor.

Outside on our patio, Mom, Tait and I prayed. We prayed that God would either heal Connor or take him home. We knew that we were not selfish enough to want to keep Connor here the way he was. If His ultimate plan was not to heal Connor, then we wanted God to relieve him from his suffering. We surrendered our precious Connor into God's Hands. We prayed for a sign. A couple of hours later, Connor became non-responsive and we called the ambulance, which led us to Children's at Legacy and Connor's last 24 hours..

It is so hard to relinquish what we love SO MUCH to God, back to our Father and Creator. We want to hold on with all we have to what we hold dear. It was so hard to let him go, yet we knew in our hearts it was right.

Just as my daughter, MacKenzie, (in her wisdom) read to Connor on his last day, we should surrender ourselves to his will. This is the verse MacKenzie read to Connor. When Jesus was in the Garden of Gethsemane waiting for the soldiers to come take him, he said to his Father in Heaven, "My Father, if it is possible, may this cup be taken from me. Yet not as I will, but as you will." Matthew 26: 39

Always Believing,
Joy

Anniversary!!!

Guess what today is?

It's the one year anniversary of the official head shaving party!!!

Here is the BEFORE picture on the way to the hospital:

Here is the AFTER picture, once everyone had their shot at cutting the ponytails off and B shaved it:

If you're so inclined, here is the video of B shaving it:

Here it is NOW:

Also, here are some links to B's posts last year around the haircutting party and surgery:

Long Day

Surgery

Buzzfest

NeuroTrauma ICU

Rest

Thank you all for being such amazing prayer warriors. I had over 2000 seizures last year. This year, I'm at about 850. So, there has been improvement. However, I am still having them. I had 150 in October, which is the most I've had since prior to being diagnosed. We don't really understand it, but we're relying on the Lord for HIS perfect healing!

My cousin

Please be in prayer for my cousin, S! I am late in posting all of this, as it occurred in September, but please begin fervently praying for them.

Here is the info, as provided by my aunt two weeks ago:

She began to have trouble with what she thought was a kidney infection or a UTI. The doctor she went to gave her some antibiotic and ordered a Cat Scan as she was urinating some blood. The Cat Scan came back that she had a cyst on her kidney, cysts on one of her ovaries and 10 kidney stones. Doctor referred her to a urologist. However, she did not go to one and she took the antibiotic, but steadily got worse. Their health insurance wasn't in place, so she was holding out for their health insurance to come into affect on October 1, but she was a week shy of that when she drove herself to the ER because she was weak as a kitten from losing so much blood. She was transferred to Scott & White where she was eventually diagnosed with Goodpasture's Disease. Doctor said the Goodpasture's Disease could have started from a virus or an infection or from inhaling hydracarbons that are found in pesticides, etc.

She is doing pretty good at home. I called this afternoon to check on them and her oldest son answered the phone. I asked him if he was helping take care of mom and he said "we all are nanny". She was resting (which S, her husband, says she does a lot of as she is so very weak from being in the hospital for a month). He says she naps a lot. She is on a very strict diet and is taking the chemotherapy pill (3 each day) mega doses of Prednizone, Iron, Insulin (evidently this disease has created a problem with her blood sugar) and I don't know what else.

She had her first outpatient dialysis yesterday and He said that went okay. He says that she is feeling pretty good. She has a long road ahead of her as the doctor said it could take 6 months to two years to heal this disease. She can't even get on a list for a kidney until she is in remission.

As well, they have three young kiddos and my cousin has had to quit his job because he was on the road all the time. So, he's had to find a new job. Please lift them up...