Keep those prayers coming for Connor

Tuesday, May 5, 2009 5:11 PM CDT

We are still wading in murky signs and directions. No blinking lights or arrows pointing us in a direction. We were really hoping God would give us some blatant direction this week.

Still waiting on the NY surgeon to review the CT scan. Don't know anything there. We really felt God was leading us to San Francisco and a vaccine therapy there. A couple hours ago, I finally spoke with the doctor there. He can supply this vaccine on a compassionate use basis, but the problem is getting a children's facility to administer it. They have already started the process with a hospital in Cincinnati for a pediatric clinical trial of this vaccine. If the hospital would agree to do this on a compassionate use basis for Connor, this would be the speediest solution (but could still take months). So, still searching for something more immediate. We continue to look into many other avenues.

At this point, he is scheduled to do another round (3 weeks) of cetuximab with the chemo. Not real crazy about the chemo part of it. I was really hoping we would have another plan in place by now, so we could forego the chemo. Still praying for that. As you can see, we still need prayers for guidance.

On a lighter note, we have some praises from yesterday. When we got the results of Connor's blood count, his white count was well in the normal range. Yeah, immune system. Glad to know that is working well. Also, he gained 2 pounds and he didn't get a stomach ache after eating his lunch yesterday. Probably the most fun event for him was when he got the game ball at his baseball game. He hit the last runner into home, giving his team the winning point. He was so proud!

Please continue to pray for
1. healing/protect his organs
2. weight gain
3. direction
4. strength/peace
5. give Glory to God

Here's a nice quote from Oswald Chambers about the Graciousness of Uncertainty. Thanks, Gwen.

"It doth not yet appear what we shall be." 1 John 3:2

Naturally, we are inclined to be so mathematical and calculating that we look upon uncertainty as a bad thing. We imagine that we have to reach some end, but that is not the nature of spiritual life. The nature of spiritual life is that we are certain in our uncertainty, consequently we do not make our nests anywhere. Common sense says - "Well, supposing I were in that condition . . ." We cannot suppose ourselves in any condition we have never been in. Certainty is the mark of the common-sense life: gracious uncertainty is the mark of the spiritual life. To be certain of God means that we are uncertain in all our ways, we do not know what a day may bring forth. This is generally said with a sigh of sadness, it should be rather an expression of breathless expectation. We are uncertain of the next step, but we are certain of God. Immediately we abandon to God, and do the duty that lies nearest, He packs our life with surprises all the time. Jesus said, "Except ye become as little children." Spiritual life is the life of a child. We are not uncertain of God, but uncertain of what He is going to do next. If we are only certain in our beliefs, we get dignified and severe and have the ban of finality about our views; but when we are rightly related to God, life is full of spontaneous, joyful uncertainty and expectancy.

"Believe also in Me," said Jesus, not - "Believe certain things about Me." Leave the whole thing to Him, it is gloriously uncertain how He will come in, but He will come. Remain loyal to Him.

Always Believing,
Joy