And He said unto me, "My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me."
2 Corinthians 12:9

Tuesday, September 25, 2018

#HealingForHaylie-Post 60

Haylie update- Sept 24

Well, today hasn’t gone exactly as planned, but I’m so thankful for our many blessings. We came into the hospital again today for another round of Erwinaze. It’s the one Haylie hates, and the child life specialist suggested she make a paper chain with all the shots she has remaining and that way she can cut them off as a countdown. We got our labs back, expecting them to be better than on Friday, but instead, they went down quite a bit. Her hemoglobin was at 6.9 and her ANC was at 20. 😬. That explains why she felt so bad last night. I thought she had just overdone it at the car wash. She is a trooper for sure. 

She is getting a blood transfusion right now. It has changed our plans but I’m so thankful for friends. She needed 2 units of blood so it takes about 4 hours. I was able to cancel Brennen’s orthodontist appointment so he didn’t have to ride his scooter there, especially since he couldn’t remember how to get there. 😂. I am so thankful for Jamie King, who picked him up from school again. You are such a blessing to our family.

I have learned so much about blood lately. I have talked to numerous doctors and had a meeting with the lady in charge of blood here at Children's today. I have to say the more I have learned, the more frustrated I am. I’ve learned that is never a good idea to go grocery shopping when you are super hungry, and it’s never good to publicly vent on Facebook when you are angry. I’ve done all I can for today, so I’ve just given the problem to God. He is much more knowledgeable and capable than me.

I’m just very thankful for the blood donors that donated the 2 units of blood that Haylie has received today. One of them was B- and one was O- Haylie and I prayed over the blood and that is all we can do today. God has got the rest.
#HealingForHaylie





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