And He said unto me, "My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me."
2 Corinthians 12:9

Friday, September 21, 2018

#HealingForHaylie-Post 58

Haylie Update - Sept 19
Today is a much better day. A friend shared a Bible verse this morning and I was so encouraged. “The steadfast love of the Lord never ceases; His mercies never come to an end; They are new every morning. Great is your faithfulness.” Lamentations 3:22-23.

Today IS a new day and God IS faithful.

We had a pretty rough day Saturday, Sunday and Monday. We had to come back to the hospital for more chemo shots on Monday and her levels had fallen again, so she required another 2 units of platelets. Her hemoglobin was at 8.3 so they decided to hold off on another blood transfusion. They only transfuse kids if they are below 8.0 so she was right on the line. She has had terrible headaches and stomachaches so we are working to try and find the problem and relive the pain somewhat.

Today we had to come back to the hospital for more chemo shots and a possible blood transfusion. Thankfully, her levels are better today so she won’t need a transfusion. Her hemoglobin is at 8.6 so it went up slightly. It’s still pretty low but she is hanging in there. She is thrilled because they didn’t have to access her port today. Yay! She already has had blood drawn and 2 shots, so no port access is good. There is a good chance she might need a transfusion on Friday, but we are hopeful her levels will keep rising. Her ANC is really low again, at 90, so we can’t go out or be around people until her levels come back up. Looks like we will be homebound for a bit so we will have a chance to catch up on movies and maybe I can get the house clean. ๐Ÿ˜œ

I’m still learning a lot about blood transfusions and blood types and what she can have. That’s another story for another time but God is faithful and everything is going to be ok. Thank you to everyone who has donated blood and platelets. You certainly make a huge difference in our life and the lives of many other kids who desperately need them.

Thanks to everyone for the continued prayers.
#HealingForHaylie

Getting her platelet transfusion. Thank you to everyone that donated blood and platelets. It is certainly a blessing to our family.


Getting 2 shots at once.

 

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