M update and Greatly Needed Prayers

Howdy ALL!

We have been fairly silent over the last few months.  Not because there wasn't anything going on, but simply because so much has been going on...

As many of you know we went to Philly just before Thanksgiving to be evaluated by a team up there.  More light was shed upon this now SEVEN year journey, that M is actually having more seizures than what we even record on a daily basis.  More or less, M is in a constant seizing state.  While this news is certainly scary it did provide reasonable explanation on why M might be feeling a certain way at any given moment and yet not have what we call a seizure.

And really since about August, M's seizures have increased and intensified.  In particular we have not had many days with no seizures.  A HUGE PRAYER REQUEST- to have more seizure-free days.  And as the seizures have intensified so did the recommendations for additional meds that unfortunately have not worked.

So it feels like we are back at square one.  At times, when there is improvement, we will come across a bump in the road only to seemingly fall backwards.  This year has been very challenging.  A common theme or phrase that we find ourselves saying is to just take one day at a time, or better, one step at a time.  I don't think we truly think on those words often enough and yet when M has the weeks upon weeks that she has been having, we truly have to take things one step at a time.

For the present, we had a decent couple weeks finishing February and beginning the month of March.  In fact, M was having the least amount of seizures that she has ever had going back to 2009.  Things were great!  M was enjoying this new found freedom...

However, last week, the rest came to an abrupt end when Monday we were met with at least 8 seizures, followed by just as many the next day and so on...Where previously over the course of 21 days M only had 21 seizures, she has had 45+ just in the last nine days.  Pretty mind boggling for sure!  Compound that with a horrible sinus problem and we have a true recipe for pain and exhaustion.  So much that we were at the ER this morning around 6AM trying to address intense, and I mean intense, pain in M's head and maybe an opportunity to shed light on the increase in seizures over the weekend.

We did spend the majority of the day in the ER to be diagnosed with a severe sinus problem that involves most of M's sinus cavities and really no answers for the seizures.  So we continue to turn our eyes to the Lord who is SOLELY supplying the strength that M has for each day.  Please join me in praying an extra special prayer for M.  It is hard to see her suffer, but so encouraging and a faith-builder to know that the Lord is sustaining her at this present time.  A huge PRAISE GOD is that while the docs and specialists that we have worked have indicated M should be in a vegetative state...SHE IS FAR FROM IT!!!!

So please pray for rest for my Princess.  Pray for her continued strength.  Pray for her current sinus issue that has made the seizures more intense and amplified.  And lastly, pray that these seizures would go away.  May M continue to glorify the Lord in all that she does and continue to share such amazing joy and Godly words of wisdom to all who she comes in contact with.

Thanks and blessings.  We'll post more soon!