Update on Haylie - Tues June 5
We had another great night. Yay!!! She actually slept from 10:30pm-2:30am this morning!! She woke up at 4:15am and wanted a salad. She settled for a few bites of a fiber bar and went back to sleep until 6:40am when she wanted the salad again.
😋.
We had to wait until 7:00 when food services finally opened. She
finally got ranch dressing and had her salad for breakfast! And thank
you to Jamie for free bird burritos for lunch yesterday and Tonni for an
amazing dinner! It was such a blessing to have a delicious meal. I
didn’t even realize how much we all needed it.
We met with her oncologist this morning and found out that her white blood count is now down to 8,500! The goal is still 0 because most of her cells are the bad T-cells. Her bone marrow will have to recover and then it can start producing healthy white blood cells again. So right now, her immunity is extremely low so we ask that if anyone is sick or even thinks they might be sick, please do NOT come visit. The doctors require everyone to wash their hands and use sanitizer and preferably a mask when you visit. Also, flowers and plants are forbidden on our floor and stuffed animals are discouraged because of risk of infection. She gets tired really easily so we ask you to please text me before visiting so I can let you know if it’s an ok time. We are still learning and getting adjusted to what will be our new normal for awhile.
I’ve been trying to write this post since 7am but have had a constant stream of doctors, nurses, phone calls and texts. Sorry if I am not able to respond, we are still a bit overwhelmed. Michael spent the first night at home so he could get some rest since he returned to work yesterday.
Haylie’s hemoglobin is reallly low so doctors said they will be doing a blood transfusion either today or tomorrow which should help her feel better. Also, I’ve had several people ask about donating blood. I believe some friends are setting up a blood drive soon. We were told to go through Carter’s blood care. Haylie is B- but it’s ok if you are not the same blood type because you can donate in honor of Haylie and she will get credit for a discount on her blood transfusions, and there are lots of other people in need of blood and it can be a lifesaving blessing for others too. We will be in touch with more info about the blood drive.
Prayer requests
1) Continued prayer for strength and healing for Haylie and for her to stay healthy from infection.
2) That Michael, Brennen and I all stay healthy so that we can be around her. (If we get sick, we will be quarantined from her)
3) That my eye would get better. I think I may have scratched my lens.
😬
4) Prayer for her platelets to increase. She is now at an 18.
5) Prayer that the blood drive be a blessing for others as well as Haylie.
Thank you to everyone. We are beyond blessed by the most amazing friends. We can feel your love and prayers. I’m learning to choose faith over fear. God is going before us and He has got this.
#healingforHaylie
Another update - June 5th
We had some fun visitors today! Blair the therapy dog came by along with our awesome teachers Mrs P, Mr Mordecai, and Mr Dunbar and our sweet friend Morgan and her mom.
We loved our visitors but today has been a really tough day. We knew we would have these occasionally. Yesterday was another round of chemo and it knocked her down pretty hard today. She is requesting no more visitors at this time until she can get some strength back.
We had another great night. Yay!!! She actually slept from 10:30pm-2:30am this morning!! She woke up at 4:15am and wanted a salad. She settled for a few bites of a fiber bar and went back to sleep until 6:40am when she wanted the salad again.
😋.
We had to wait until 7:00 when food services finally opened. She
finally got ranch dressing and had her salad for breakfast! And thank
you to Jamie for free bird burritos for lunch yesterday and Tonni for an
amazing dinner! It was such a blessing to have a delicious meal. I
didn’t even realize how much we all needed it. We met with her oncologist this morning and found out that her white blood count is now down to 8,500! The goal is still 0 because most of her cells are the bad T-cells. Her bone marrow will have to recover and then it can start producing healthy white blood cells again. So right now, her immunity is extremely low so we ask that if anyone is sick or even thinks they might be sick, please do NOT come visit. The doctors require everyone to wash their hands and use sanitizer and preferably a mask when you visit. Also, flowers and plants are forbidden on our floor and stuffed animals are discouraged because of risk of infection. She gets tired really easily so we ask you to please text me before visiting so I can let you know if it’s an ok time. We are still learning and getting adjusted to what will be our new normal for awhile.
I’ve been trying to write this post since 7am but have had a constant stream of doctors, nurses, phone calls and texts. Sorry if I am not able to respond, we are still a bit overwhelmed. Michael spent the first night at home so he could get some rest since he returned to work yesterday.
Haylie’s hemoglobin is reallly low so doctors said they will be doing a blood transfusion either today or tomorrow which should help her feel better. Also, I’ve had several people ask about donating blood. I believe some friends are setting up a blood drive soon. We were told to go through Carter’s blood care. Haylie is B- but it’s ok if you are not the same blood type because you can donate in honor of Haylie and she will get credit for a discount on her blood transfusions, and there are lots of other people in need of blood and it can be a lifesaving blessing for others too. We will be in touch with more info about the blood drive.
Prayer requests
1) Continued prayer for strength and healing for Haylie and for her to stay healthy from infection.
2) That Michael, Brennen and I all stay healthy so that we can be around her. (If we get sick, we will be quarantined from her)
3) That my eye would get better. I think I may have scratched my lens.
😬4) Prayer for her platelets to increase. She is now at an 18.
5) Prayer that the blood drive be a blessing for others as well as Haylie.
Thank you to everyone. We are beyond blessed by the most amazing friends. We can feel your love and prayers. I’m learning to choose faith over fear. God is going before us and He has got this.
#healingforHaylie
Another update - June 5th
We had some fun visitors today! Blair the therapy dog came by along with our awesome teachers Mrs P, Mr Mordecai, and Mr Dunbar and our sweet friend Morgan and her mom.
We loved our visitors but today has been a really tough day. We knew we would have these occasionally. Yesterday was another round of chemo and it knocked her down pretty hard today. She is requesting no more visitors at this time until she can get some strength back.
Her blood levels are really low and she is expected to get a blood
transfusion tonight or tomorrow so hopefully that will get her some
energy back. Thank you everyone for understanding. Please keep her in
your prayers.
Be strong and courageous. Do not be afraid or troubled for the Lord your God is with you wherever you go. Joshua 1:9
#HealingforHaylie
Be strong and courageous. Do not be afraid or troubled for the Lord your God is with you wherever you go. Joshua 1:9
#HealingforHaylie
Posts
No comments:
Post a Comment