Update #4
Today has been a very good day! Her white blood counts are down to 50,000! She started eating and has gotten some strength back. The doctors saw her this morning and are very happy with her progress. She was disconnected from several of the monitors so she has many less wires today. She even went to the playroom today for about 30 min.
Haylie had a good night, or as well as can be expected. They are pumping her full of fluids to try and flush the chemo out so she needs to potty about every 40-60 mins. That is a great thing, but it makes for a terrible nights rest. We are exhausted but doing better. We have had several small victories today and we will celebrate them.
Thank you for the continued prayers. And a big thank you to Ella for
the awesome sleeping mask, she loves it for her naps and the blanket
kept me from freezing last night! And thank you Ashley for the foam pad
to sleep on. It makes the hard couch so much better. Here are some
pictures from today.
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Update #5
Praise God, we had a great night. Since they removed the monitors, we didn’t have the alarms going off all night when Haylie’s heartbeat would reach very very low levels. The drs said her ekg was normal and it was all caused by the steroids so we shouldn’t be panicked. They also reduced the fluids in her IV so we made it for 2 hours stretches instead of every 20-40 mins like the last few days. I actually got a few hours sleep and I feel so much better.
Prayers for today
#1- Today she will begin her next chemo treatment, so please pray that her body responds well.
#2- That Haylie’s white blood count continues to come down and her platelets increase. Currently due to her blood type they don’t have any platelets here and they have to have them transferred from Parkland.
#3- Michael is returning to work today. Please pray he has a good day with lack of sleep and that Haylie and I do well without his extra help today.
#4- My right eye is super blurry, I think it is just from lack of sleep, but please pray I can see normal again.
#5- Haylie’s jaw is very painful and she is having trouble eating. We were told it is a side effect of one of the steroids she is on. Please pray the pain goes away.
#6- Pray for strength for Michael, Haylie and me and for God to be glorified in all circumstances.
Today this is our mountain. We have seen God move mountains and we know He can do it again.
2 of our great doctors |
Nanny and Pops came to visit |
Going for a walk |
She loves the sleeping mask her friend Ella brought her |
Making a craft of Peanut our dog |
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Praise God, we had a great night. Since they removed the monitors, we didn’t have the alarms going off all night when Haylie’s heartbeat would reach very very low levels. The drs said her ekg was normal and it was all caused by the steroids so we shouldn’t be panicked. They also reduced the fluids in her IV so we made it for 2 hours stretches instead of every 20-40 mins like the last few days. I actually got a few hours sleep and I feel so much better.
Prayers for today
#1- Today she will begin her next chemo treatment, so please pray that her body responds well.
#2- That Haylie’s white blood count continues to come down and her platelets increase. Currently due to her blood type they don’t have any platelets here and they have to have them transferred from Parkland.
#3- Michael is returning to work today. Please pray he has a good day with lack of sleep and that Haylie and I do well without his extra help today.
#4- My right eye is super blurry, I think it is just from lack of sleep, but please pray I can see normal again.
#5- Haylie’s jaw is very painful and she is having trouble eating. We were told it is a side effect of one of the steroids she is on. Please pray the pain goes away.
#6- Pray for strength for Michael, Haylie and me and for God to be glorified in all circumstances.
Today this is our mountain. We have seen God move mountains and we know He can do it again.
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