"Remarkable" -Day 5

"Remarkable" said the Neurologist to us today.  Princess' progress is nothing short of a miracle.  We were transferred from the ICU today as she has continued to progressively get better. Truly, she is ahead of schedule or any progress that the physicians thought she would make.  Better, what an answer to prayer and to show that God is in control and we just have to continue to put our full trust and faith in Him.  He is working out a plan and He hears the many that have gone before us in prayer.  Humbly, thank you. And again, to the medical community, with what Princess just went through less than a week ago and to be where she is today, it is REMARKABLE!


Princess indeed has had her best day today over these last 5 days.  The first milestone was when she got to stand today for the first time in 5 days.  While wobbly and shaky, I am certain after seeing her today and her determination, she will be fully able to move and walk unassisted soon.  Her strength is very weak and she has shared today that she is extremely sore.  Understandably, she is still very tired and soon after we were transferred our of the ICU, we both were able to take a 2 hour nap. 


Princess' mother, and myself were able to share what happened today and reality for Princess had set in for her.  Obviously heavy, the weight of this whole ordeal is hard to digest mentally and emotionally.  It has been good to be able to just sit with Princess, hold her hand, hug her, and pray together thanking God for this journey and strength in it. 


So today was a day to get settled into our new "home" for the next few days, rest and get ready for a physically active day tomorrow.  We anticipate that physical therapy will be by at some point to begin working on Princess' walking, strength and coordination, as well as improvement of speech (if needed- in the last day her voice is becoming stronger). 


I hope to at the end of this journey list all the pray requests and then display how God has answered them.  It is truly amazing, and I should not be thinking of it as a surprise. 


One key point that I think I need to make that I have not...Princess has continued to be seizure-free since Friday at 9AM.  While this is awesome, in the last two years going 4 days without a seizure is quite common.  What is for us very amazing, is that we have not made any changes in medicines.  We are exactly at the same 95% reduction of one of her anti-seizure meds, 86% reduction of her other seizure med, and still doing the same dose of CBD (Hemp Oil). 


So, Lord willing, we WILL have a great day tomorrow!  I would expect that we will be in the hospital through Wednesday returning home Thursday...


Please Pray:

• No seizures for Princess
• Princess would be able to make it through physical therapy
• Her soreness and other impacts of the ventilator would subside.
• Her coordination and motor skills would strengthen
• Her memory would improve (this being a big one as many of you know Princess has an incredible memory and it has taken a toll.  People, faces, and events have seem to just disappeared in her mind).
• Provision/Protection for Critter- She desparately wants her Mommy back home.
• Provision of strength for Gamma (Princess' mother-aka THE MOTHER IN LAW).  She has been incredible taking care of Critter, manning "the fort," and traveling back and forth to the hospital.