Heavy Meds...

2nd Corinthians 4:8, the apostle Paul writes, "we are hard pressed on every side, but not crushed; perplexed, but not in despair." 


Today has been a long day.  First, I am very, very humbled and thankful for the many who have reached out either in person, text, email, message, call, etc. Princess had somewhat of a family reunion today as two of her Uncles and an Aunt were here to visit today.  Oh, how I long for her to welcome you with a smile and a hug as I know she would desperately love to.  I am grateful for our family, as well as our church family who has been also very supportive in this journey. 


While my previous post gave detail about our night/early morning, it wasn't until 6 AM this morning that Princess finally laid still.  And though she finally laid still, unfortunately her brain did not comply and she sadly continued to have seizures all throughout the day.  Due to her seizures, they did continue to increase her sedatives.  While this may not mean much to those reading, a nurse was able to describe that Princess is literally on doses that are really meant for Offensive Lineman in the National Football League.  Hence, while we saw that it took quite a bit to even get her calm, she is requiring a substantial amount well more than a girl her size should really require. 


And yes, though heavily sedated and on a ventilator, she is still having seizures.  Early today it was recorded nearly one an hour and that number did lessen this afternoon.  One of the consequences to the heavy sedation is that her blood pressure needs to be closely monitored.  Getting to a point of 70/42 they had to momentarily lessen the sedatives to only discover the lessening the sedative opened a floodgate for seizure activity to take place. 


To put this ICU experience in perspective, Princess is requiring even greater amounts of sedatives and is still seizing as to our visit just two weeks ago, where her seizure activity had been quelled under less sedation.


The Lord has provided in amazing ways.  Your prayers have been answered as we were reunited with our precious Nurse from our last time.  Her care, and concern for Princess is so amazing!  To those that came today, last night, and over these last few weeks, I don't know how we could every repay you, and I am especially praying for blessing upon blessing for you and your sacrificial love. 


Please pray for:

• Princess' seizures to stop (literally, stop)
• Wisdom as I conference with the physicians tomorrow
• For Princess respond favorably to the weaning of the sedatives when that time comes
• Healing from potential damage due to her literally having seizure after seizure for nearly 14 hours