I found out it is the steroids that are causing all the problems and
that we will have to take them once a month for the next 2 years. 😩
At least now we know the effects, and will do our best to not plan
anything during steroid week. One of the other moms today told me they
called their steroid week, hell week. That is definitely not a good
sign. Thank goodness we still have her wheelchair, and she agreed to
ride in it to the studio. She laid down on the couch in the waiting room
until right before the segment to save her energy. Once it was over,
she crashed, but she made it through! She fell asleep in the car on the
way home and is asleep on the couch now. Tomorrow is our last day to
have to take the dex so I’m hoping she will have her energy back by
Friday to have a wonderful time at the Gala.
#HealingForHaylie
Video to watch
#HealingForHaylie
Video to watch
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