Connor

A new update on Connor...

Connor has started fluids at home and the TPN (nutrition thru his iv). Yeah! We all did a happy dance when it started. Finally, Connor will get some nutrition. He really needs to gain some weight. He's SO thin.

His sodium levels continue to rise. They were 121, now 128 and needs to be 135 and above. His breathing and oxygen is good, and the swelling on his legs continue to decrease. Praise God.

Now, for the hole in his abdomen. Surgery is not a good option for him right now, mainly because his sodium is low. He will not metabolize the anesthesia well and would possibly be at risk for seizure and not waking up. WE are looking at two other options that would be less invasive and don't involve anesthesia.

The best option is to use a fibrin glue to close the hole. It is used often in adults and has an 80% success rate to close the hole. It is kind of like "fix- a-flat." They would use local anesthesia and just use a needle to put the glue on the hole. The doctor who could do this at Children's has not done this before. She's consulting an adult doctor who does this frequently - our friend who gave us the idea - to get the information and decide whether or not she will do this. Please pray that she will decide to do the procedure and she can schedule it soon.

The second option is to put another type of feeding tube in (one that is larger than the old one) that would plug the hole. We wouldn't use the feeding tube, it would just be used as a stopper. The fluoroscopy department has to be used to guide the tube to the exact spot of the hole, otherwise it won't work correctly . This would also take a couple days to schedule.

Neither one of these are guaranteed to work. There could be other issues that make these options less viable. PLEASE, PLEASE PRAY THAT WE CAN GET SOMETHING SCHEDULED THIS WEEK AND THAT IT WILL WORK. Doctors always prepare you for the what ifs, which leave my head swimming with doubts. We really need God to resolve this issue. Connor eats and drinks constantly (even thru the night) because he never feels satisfied. We can't be sure that Dr. Rodriguez's medicine is absorbing completely.

I can't believe that God would bring us so far, to have this obstacle be impossible to overcome. I will let you know when something gets scheduled. Thanks for your prayers in this matter. Greatly needed. We just need to trust God to bring us past this new obstacle. Trusting Him is the only thing that gets us through.

'Tis so sweet to trust in Jesus,
and to take him at his word;
just to rest upon his promise,
and to know, "Thus saith the Lord."

Refrain:
Jesus, Jesus, how I trust him!
How I've proved him o'er and o'er!
Jesus, Jesus, precious Jesus!
O for grace to trust him more!

I'm so glad I learned to trust thee,
precious Jesus, Savior, friend;
and I know that thou art with me,
wilt be with me to the end.
(Refrain)

Recognize that old hymn?

Always believing,
Joy Cruse