- Seizures have decreased a bit
- I am titrating off one of the meds
- I have an appt. with a specialist in Houston next week
- B's great-grandmother celebrated her 100th b-day this last weekend.
- Precious angel at B's office
*The seizures have decreased a bit. As you know, last Wed. I had ELEVEN! Yucky. The next day I had six. Since then, I have averaged around 2-3 each day. Thank you, Lord. The fewer I have, typically means that I have more energy. So, that is nice.
*I have been titrating off of one of the meds. I asked the doc if I could titrate down since I was still having quite a few seizures on the high doses. My question was why am I on such high doses of these meds if they're not helping? Let's at least back down a bit and see what happens. I am having fewer. So, hopefully, that change is helping.
*Through God's wonderful provision, I was able to get an appt. with a renowned epileptologist in Houston. B was able to have a conversation with a gentleman last week who's wife has had seizures since she was 17 (she's now 32). She was able to get in with this doc and had the surgery that I mentioned in the previous post. She's only had three seizures since the surgery.
Also, one of my dear friends (she was in our wedding) is a neurosurgery NP in Houston. She has been asking around trying to find the best option for us. She actually works with the neurosurgeon that performed the surgery on the video we posted. Anyway, she was able to pull some strings and I have an appt. on Monday with this epileptologist. Thank you, Jesus!
*B's great grandmother celebrated her 100th b-day this last weekend. Most of the family was able to go to her party. Due to all of the time B has taken off of work to be in the hospital with me, we weren't able to take time to drive to Ohio for her party. We're sad we missed it. However, she told B's dad that she's already looking forward to 101! So, hopefully we will be able to be there for that party!!
*Last, but definitely not least! There is a precious Angel in B's office. We want to send notes of gratitude, humility, etc., to this person, but they want to remain anonymous. So, if you are reading this, Wow, You amaze us!! This precious angel keeps sneaking into B's office and leaving cash to help us, but most importantly, they are leaving notes of encouragement. Typically, we want credit for our gifts to others. However, this person is so humble and just wants to bless us. It has truly humbled and blessed us and taught us a precious lesson!
May you all be blessed this week and find contentment in the Lord, as I am trying to do...if you have tips, I welcome them!
I contiune to be in awe of how God works. If possible, I'd love to see you while in Houston. Praising him!
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