Haylie update - Aug 20, 2019
We have had a lot of changes over the past week, but overall, I think they will all be for the best. The first big change was when we received Haylie’s chemo and steroid schedule and placed it next to the school schedule. Reality set in and we knew she would be missing more cheer events than she would be able to make. Cheer camp made it evident that her body just wasn’t ready for where we set our expectations. I emailed her cheer coach and we had to withdraw from being a cheerleader this year. It was tough, but she took it pretty well. She has turned her energy to soccer now and she is so determined. Today she had her first scrimmage and she got out there and gave it her all. She still has to go in short bursts, but man am I proud of her.
The second blow came when her hair started falling out again last week. Wow, that was tough. I tried to deny it for the first 2 days, but when massive amounts where falling out for us to find on her pillow the next morning, I just cried with her. It totally took us by surprise because the doctors told us she shouldn’t lose it again. Apparently, there is a small percentage of kids that lose their hair on vincristine (a chemo drug) in maintenance. Not now...middle school is tough enough with a full head of hair, and she was just starting to look like a normal kid again, not the cancer kid look. We had to just give that to God too. He is so gracious, because the last 2 days, her hair has stopped falling out and it appears she will still get to keep it. Hallelujah!!!! Huge win! We have gotten less attached to things like hair, but oh, it still hurts every time it has fallen out. We have taken so many things for granted in the past.
Lastly, and the biggest change officially happened today. Haylie will not be going to her middle school, but will be attending iUniversity Prep. It’s an online school that will be flexible to work with her chemo and steroid schedule. I didn’t want to post on it earlier because we were still in the registration process. We had her interview this morning and she is officially registered! We got her class list this morning and she is very excited. We have been working with her new school and her old school and everyone thought this would be best because she would possibly be missing up to one week or more every month. The online classes will give her flexibility to work ahead before steroid weeks so she can stay caught up on all the curriculum.
The hardest part for us to commit to online school was the social aspect. I told Haylie we have to make it very intentional on getting together with friends more often. She has missed seeing her friends everyday the most this past year. So please, reach out because she definitely wants to see friends.
Today was the first day of school in our district. It was hard not having Haylie go to middle school like all her friends, but I knew it was the right choice when she spent the morning throwing up and not feeling well. I am so glad that was not her first day memory back at middle school. Instead, she was able to film a commercial for Children’s Health Dallas that will air in September. She also received a signed autographed picture from the cast of Fuller House today. That totally made her day. Thanks Buckley!
We have had a few setbacks, but overall it is good. She is still moving forward strong. Thank you everyone for the continued prayers. We can still feel them. God continues to go before us.
For I know the plans I have for you declares the Lord. Plans to prosper you and not to harm you, plans to give you a hope and a future. Jer 29:11
#HealingForHaylie
Video
We have had a lot of changes over the past week, but overall, I think they will all be for the best. The first big change was when we received Haylie’s chemo and steroid schedule and placed it next to the school schedule. Reality set in and we knew she would be missing more cheer events than she would be able to make. Cheer camp made it evident that her body just wasn’t ready for where we set our expectations. I emailed her cheer coach and we had to withdraw from being a cheerleader this year. It was tough, but she took it pretty well. She has turned her energy to soccer now and she is so determined. Today she had her first scrimmage and she got out there and gave it her all. She still has to go in short bursts, but man am I proud of her.
The second blow came when her hair started falling out again last week. Wow, that was tough. I tried to deny it for the first 2 days, but when massive amounts where falling out for us to find on her pillow the next morning, I just cried with her. It totally took us by surprise because the doctors told us she shouldn’t lose it again. Apparently, there is a small percentage of kids that lose their hair on vincristine (a chemo drug) in maintenance. Not now...middle school is tough enough with a full head of hair, and she was just starting to look like a normal kid again, not the cancer kid look. We had to just give that to God too. He is so gracious, because the last 2 days, her hair has stopped falling out and it appears she will still get to keep it. Hallelujah!!!! Huge win! We have gotten less attached to things like hair, but oh, it still hurts every time it has fallen out. We have taken so many things for granted in the past.
Lastly, and the biggest change officially happened today. Haylie will not be going to her middle school, but will be attending iUniversity Prep. It’s an online school that will be flexible to work with her chemo and steroid schedule. I didn’t want to post on it earlier because we were still in the registration process. We had her interview this morning and she is officially registered! We got her class list this morning and she is very excited. We have been working with her new school and her old school and everyone thought this would be best because she would possibly be missing up to one week or more every month. The online classes will give her flexibility to work ahead before steroid weeks so she can stay caught up on all the curriculum.
The hardest part for us to commit to online school was the social aspect. I told Haylie we have to make it very intentional on getting together with friends more often. She has missed seeing her friends everyday the most this past year. So please, reach out because she definitely wants to see friends.
Today was the first day of school in our district. It was hard not having Haylie go to middle school like all her friends, but I knew it was the right choice when she spent the morning throwing up and not feeling well. I am so glad that was not her first day memory back at middle school. Instead, she was able to film a commercial for Children’s Health Dallas that will air in September. She also received a signed autographed picture from the cast of Fuller House today. That totally made her day. Thanks Buckley!
We have had a few setbacks, but overall it is good. She is still moving forward strong. Thank you everyone for the continued prayers. We can still feel them. God continues to go before us.
For I know the plans I have for you declares the Lord. Plans to prosper you and not to harm you, plans to give you a hope and a future. Jer 29:11
#HealingForHaylie
Video
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