And He said unto me, "My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me."
2 Corinthians 12:9

Thursday, February 14, 2019

#HealingForHaylie-Post 81


Haylie Update- Feb 13

Yay! Haylie is officially done with the delayed intensification phase! Oh we are so happy to be done with this phase. She just had her last Erwinaze shot!! They have been the most painful and frequent chemo shots that required us to come to the hospital 3 times a week. So very excited that she just had the last one!!!

Her levels are still very low, so we are sitting here while she gets another blood transfusion today. Her platelets are looking good and her ANC is finally starting to rise again. It was at 90 today, which is not good, but it is up from 20 on Monday. Because her levels are so low, she will get a week off of chemo before we begin the next phase, Maintenance. 

Today didn’t go quite as planned, but we got through it. We knew Haylie would need a blood transfusion because her hemoglobin levels were already borderline on Monday and we postponed it until today. She was showing all the signs and we fully expected the transfusion, but for some reason when the doctor said Haylie needed it today, tears just started rolling down her face. Poor thing. Then the throwing up started. We couldn’t get a throw up bag fast enough so the nurse grabbed the gift bag they had given her to celebrate her last shots. 🙈 She later told me she just wanted today to be perfect so she could celebrate. She learned an important lesson today. Life doesn’t always go as planned. You have to not let setbacks get you down, just keep moving forward and find the good in things.

While we couldn’t go out to eat at a restaurant today because of her levels, we did get her favorite dish at The CheeseCake Factory to go and celebrated at the house. All in all, I would consider today a pretty good day. We are one big step closer to our goal...being cancer free. We are so thankful to the many people who have helped us along the way.
#HealingForHaylie

















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