Haylie update - Jan 9
It’s been a pretty good week. Haylie started her nelarabine treatments on Monday so we have to be at the hospital all week. It’s 5 consecutive days of infusions so here we are on day 3. The first day, Monday, went well. Tuesday she was nauseous and threw up quite a bit. Today has been rough. She opted to get her port accessed every day rather than keeping it in all week like in the past. The nurse yesterday pushed so hard I thought she might break Haylie’s sternum, so Haylie has been extremely sore. I knew it would be tough today because of her soreness, but unfortunately the nurse today missed her port. 🤦🏽♀️. Haylie usually takes it like a champ so I knew when she was writhing in pain something wasn’t right. The nurse kept moving the needle around (3 times) trying to get the port. I asked the nurse if she needed to take it out and try again but she kept saying everything was right. It wasn’t until she put the flush in that Haylie started yelling that it was burning that the nurse finally took it out and admitted she missed. 🙁. So...we had to try again. We requested one of Haylie’s favorite nurses from the clinic who came over and got it first try. Thank you nurse Jennifer!
Today was a pretty big day because we have a photo shoot with the hospital at 3:00. We had allowed ourselves extra time but it will be so close to see if we make it now that we were set back with the port. 😬. Haylie has decided to leave the port in because it hurts so much. Bummer because today was the one day we will be taking pictures. Oh well, it will be ok.
Update part 2
We were late, but made it to the photo shoot! She also decided to have the port taken out and endure the pain again tomorrow so the pictures wouldn’t show her port. The photo shoot was really fun and it turned her bad day into something really special. I’ll post her photo shoot pictures in the next post. 😉
We were late, but made it to the photo shoot! She also decided to have the port taken out and endure the pain again tomorrow so the pictures wouldn’t show her port. The photo shoot was really fun and it turned her bad day into something really special. I’ll post her photo shoot pictures in the next post. 😉
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| We ran into her friend, Toni, from camp. |
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| This was right after we had to remove the missed port. 😢 |
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| Very painful. Bless her. |
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| Posing for the photo shoot. |
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