Haylie update - Nov 19
I realize I haven’t gotten an update post out in a while. Sorry this one is so long. I actually typed 2 separate ones up, only to have Facebook completely reset and delete all that I’d worked on. 😩 Honestly I was just too exhausted each time to redo it. Going to the hospital 3 times a week has just drained me.
A lot has happened in the last 2 weeks. Haylie is doing really well. She has has some really good days, and we have had some rough ones, too. I think we are learning how to cope with the tough days better and it is making it easier. Nausea, vomiting and terrible stomach aches are just a part of everyday for Haylie right now, but we are learning how to better get through it all.
I read the best quote by Elizabeth Elliott the other day. God doesn’t give us what we can handle, God helps us handle what we are given. Amen to that! If it wasn’t for God giving us strength and the help of family and friends, I don’t know how we would get through this season of our life. I’m so very thankful for so many amazing moms who have stepped in to get Brennen from school countless times when I wasn’t able to make it home in time for pickup from the hospital. We have been so blessed by so many people. I’m not sure if they will ever know how much I appreciate them for all they have done for us. We were blessed with the cleaning service that came by again 2 weeks ago to rescue my out of control house. Thank you to Two Maids and a Mop! They were fantastic and ever so helpful to our family.
Haylie has had several really good days and was able to go to her school during picture retakes so that she can be included in the school yearbook. Her wonderful homebound teacher, Ms Gallegher, invited several of Haylie’s close friends to eat lunch in her room so Haylie could be a part of school for 30 mins. She even got to meet several of her teachers. It was a definite highlight for her. She had been counting the hours until she could go see her friends at school.
She also got to attend Brennen’s last baseball tournament this season. It was so cold and the championship game didn’t end until after 11:00pm. Haylie wanted to get her picture taken with the sweet baseball team that has supported her and came up with the “Homeruns for Haylie” campaign after their win, but unfortunately, she was totally drained and fell asleep on the cold bleachers in the last inning, so she didn’t get any pictures with them. Next time... She was such a trooper to sit in the cold stands for 6 hours the day after she had 3 types of chemo and a spinal tap. 😬
We were able to attend a Dallas Mavericks game on Wednesday with tickets given to us by Hope Kids. It was a fun time that we were able to make a fun family memory.
Yesterday she delivered 4 boxes to our church for operation Christmas Child to send a Christmas gift to a poor child in another country, who otherwise probably not get anything for Christmas. I love how her heart wants to help others. I think she is learning kindness and generosity from all the wonderful people that have showed it to us.
I also want to ask for prayer for another family that lives on our street. I recently found out that their 2 year old son was diagnosed with stage 4 cancer and it has spread. I understand how their world has just gotten turned upside down. They need our prayers. I am going to try and meet them and offer any help that I can. We are further down the road than they are and hopefully I can share some helpful things that have worked for us.
Thank you for all the prayers. We love you all. Hope everyone has a Happy Thanksgiving.
#HealingForHaylie
I realize I haven’t gotten an update post out in a while. Sorry this one is so long. I actually typed 2 separate ones up, only to have Facebook completely reset and delete all that I’d worked on. 😩 Honestly I was just too exhausted each time to redo it. Going to the hospital 3 times a week has just drained me.
A lot has happened in the last 2 weeks. Haylie is doing really well. She has has some really good days, and we have had some rough ones, too. I think we are learning how to cope with the tough days better and it is making it easier. Nausea, vomiting and terrible stomach aches are just a part of everyday for Haylie right now, but we are learning how to better get through it all.
I read the best quote by Elizabeth Elliott the other day. God doesn’t give us what we can handle, God helps us handle what we are given. Amen to that! If it wasn’t for God giving us strength and the help of family and friends, I don’t know how we would get through this season of our life. I’m so very thankful for so many amazing moms who have stepped in to get Brennen from school countless times when I wasn’t able to make it home in time for pickup from the hospital. We have been so blessed by so many people. I’m not sure if they will ever know how much I appreciate them for all they have done for us. We were blessed with the cleaning service that came by again 2 weeks ago to rescue my out of control house. Thank you to Two Maids and a Mop! They were fantastic and ever so helpful to our family.
Haylie has had several really good days and was able to go to her school during picture retakes so that she can be included in the school yearbook. Her wonderful homebound teacher, Ms Gallegher, invited several of Haylie’s close friends to eat lunch in her room so Haylie could be a part of school for 30 mins. She even got to meet several of her teachers. It was a definite highlight for her. She had been counting the hours until she could go see her friends at school.
She also got to attend Brennen’s last baseball tournament this season. It was so cold and the championship game didn’t end until after 11:00pm. Haylie wanted to get her picture taken with the sweet baseball team that has supported her and came up with the “Homeruns for Haylie” campaign after their win, but unfortunately, she was totally drained and fell asleep on the cold bleachers in the last inning, so she didn’t get any pictures with them. Next time... She was such a trooper to sit in the cold stands for 6 hours the day after she had 3 types of chemo and a spinal tap. 😬
We were able to attend a Dallas Mavericks game on Wednesday with tickets given to us by Hope Kids. It was a fun time that we were able to make a fun family memory.
Yesterday she delivered 4 boxes to our church for operation Christmas Child to send a Christmas gift to a poor child in another country, who otherwise probably not get anything for Christmas. I love how her heart wants to help others. I think she is learning kindness and generosity from all the wonderful people that have showed it to us.
I also want to ask for prayer for another family that lives on our street. I recently found out that their 2 year old son was diagnosed with stage 4 cancer and it has spread. I understand how their world has just gotten turned upside down. They need our prayers. I am going to try and meet them and offer any help that I can. We are further down the road than they are and hopefully I can share some helpful things that have worked for us.
Thank you for all the prayers. We love you all. Hope everyone has a Happy Thanksgiving.
#HealingForHaylie
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| Lunch with friends! |
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| Getting prepped for more chemo and another spinal tap. |
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| Sweet girl in recovery |
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| Faithful Peanut always by her side |
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| Champions! |
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| Just finished her last shot of Erwinaze for this round! |
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| Celebrating at her favorite restaurant, Olive Garden |
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