This past week has had its ups and downs for sure, but I am so thankful for moments when we can forget about cancer and just have fun enjoying life. Haylie is such a social person and she really gets encouraged and energized by being around friends. We were thankful to see sweet friends at the homecoming parade, but even more thankful to have a weekend to spend with family. It was so good to hear laughter filling the house. Haylie had so much fun just being a kid with her cousin Sage. I don’t even know how much slime was made between the two of them.
😜
I haven’t posted in about a week, so a lot has happened since my last
post. Last week, Haylie did not make her blood counts to have her
procedure done. I actually think that was a good thing. Doctors gave her
a week off of chemo to try and get her ANC back up. Last time she was
off for a week to get her counts back up she did so well that her count
jumped from 110 to 1970 and her hair even started growing back! It’s a
small thing, but it gives us hope. Doctors said her hair would not grow
back for months and that this hair would fall out, but so far it hasn’t.
She is a fighter and we are encouraged that she is beating the odds.
Her ANC was at 20 on Friday.
😬
She needs to be at least 750 for her bone marrow test and spinal tap
tomorrow. I expect her levels to be way up. She has so much more energy
and feels so much better than in the last 2 weeks. It’s so good to see
her doing stuff that I used to take for granted. She rode her bike down
the street for the first time since May. Her legs got really tired after
one short ride, but we will still take it as a success and celebrate
the victory.
It was great to see the kids playing cards with BoomBoom (grandpa). We taught them the old card game spoons and they are hooked.
Michael and I were even able to make it to church on Sunday, while Mamie and Stephanie stayed with Haylie at the house. I love the worship service at our church and I’ve really missed it. It was the international worship conference weekend and it was amazing to hear worship in several different languages. It doesn’t matter what language we speak, God is still God!
Ok, here is the big one. I’m asking for prayer for Haylie’s bone marrow test tomorrow. The last time she had her bone marrow test was the day we were released from the hospital the first time. She was still at 2% cancer cells then. She needs to be at 0% tomorrow or we have to take the next step of a bone marrow transplant. She looks great and is feeling so much better this week so I am extremely hopeful. God has got this. I know He is going before us right now.
No eye has seen, no ear has heard, no mind has conceived what God has prepared for those who love him. 1 Corinthians 2:9
I believe God still has big plans in store for Haylie and I can’t wait to see them.
#HealingForHaylie
Her ANC was at 20 on Friday.
😬
She needs to be at least 750 for her bone marrow test and spinal tap
tomorrow. I expect her levels to be way up. She has so much more energy
and feels so much better than in the last 2 weeks. It’s so good to see
her doing stuff that I used to take for granted. She rode her bike down
the street for the first time since May. Her legs got really tired after
one short ride, but we will still take it as a success and celebrate
the victory.It was great to see the kids playing cards with BoomBoom (grandpa). We taught them the old card game spoons and they are hooked.
Michael and I were even able to make it to church on Sunday, while Mamie and Stephanie stayed with Haylie at the house. I love the worship service at our church and I’ve really missed it. It was the international worship conference weekend and it was amazing to hear worship in several different languages. It doesn’t matter what language we speak, God is still God!
Ok, here is the big one. I’m asking for prayer for Haylie’s bone marrow test tomorrow. The last time she had her bone marrow test was the day we were released from the hospital the first time. She was still at 2% cancer cells then. She needs to be at 0% tomorrow or we have to take the next step of a bone marrow transplant. She looks great and is feeling so much better this week so I am extremely hopeful. God has got this. I know He is going before us right now.
No eye has seen, no ear has heard, no mind has conceived what God has prepared for those who love him. 1 Corinthians 2:9
I believe God still has big plans in store for Haylie and I can’t wait to see them.
#HealingForHaylie
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| The grandkids |
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She is trying to teach Peanut how to play the piano.  |
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| Beautiful sunset at the homecoming parade |
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