Haylie update - August 1
I can’t believe it’s already August. It’s been a few days since I’ve given an update. We were discharged from the hospital on Saturday afternoon, so we have been home getting to sleep in our own beds. Praise God! Friday night was a little rough because of the rescue steroids that she was given to stop her reaction and caused her breathing and heart rate to get really really low and set off the monitors all night long. Needless to say, I didn’t get much sleep at all, so I have been too tired to get on Facebook for an update the last few days.
We are beyond thankful for all the blood and platelet donations that everyone has donated. Haylie was given a transfusion of platelets on Saturday morning. That was her 3rd transfusion in just one week, 2 blood transfusions and one platelet transfusion, and each time there have been an available supply of B- blood and platelets ready for her! I actually received an email from the Carter blood guy yesterday saying the Red Cross has announced a shortage of blood, but DFW is not included in that because of all the blood drives that have been taking place. Y’all that is absolutely amazing and warms my heart! Who knows how many more lives have been saved because of all the amazing people that have been out donating for our daughter. Bless you all!!
Haylie is doing really good! She even got outside to hit Brennen some baseballs in the backyard on Monday. Her levels are probably the lowest they have ever been, but doctors are on top of it. They are expecting her body to start recovering from all the chemo treatments and start to make its own blood and platelets in the next week or two. We are pretty much home bound at this time because her body has no immunity right now. We are praying for her white blood cells, red blood cells and platelets to recover even faster than the doctors expect. Once her levels come back, she will get hit with another round of chemo that will knock her levels back down. This will become a normal cycle for us for the next few months.
Her treatments were just once a week, but after her bad reaction, we now have to go in 3 times a week for shots.
😩.
Haylie is not at all happy about having to get poked so many times,
especially after we thought everything could be done through her port.
She has handled the extra shots pretty well so far. I’m just thankful
she hasn’t had an reactions to the new medication.
This is a rough time for us as I feel like we are in the middle of a raging storm. The other morning I awoke to a storm rolling in. The wind was so strong it was pushing against the windows and making creaking noises. Then came the rain. I was reminded that storms in our life can be scary, but God is faithful and is our protector and shelter. The storm brings the rain, which will eventually bring growth and new life. I love the smell after the rain. It is so clean. I think the rain in our lives can sometimes wash us clean and allow us to see more clearly. The storm can tear down a few things, but sometimes that will allow us to see our weaknesses so we can build it back stronger. Haylie is a fighter and she will come out of this much stronger than she was before. God is growing us all right now and I am thankful for that. Jesus bring the rain...
#HealingForHaylie
Making brother work
I can’t believe it’s already August. It’s been a few days since I’ve given an update. We were discharged from the hospital on Saturday afternoon, so we have been home getting to sleep in our own beds. Praise God! Friday night was a little rough because of the rescue steroids that she was given to stop her reaction and caused her breathing and heart rate to get really really low and set off the monitors all night long. Needless to say, I didn’t get much sleep at all, so I have been too tired to get on Facebook for an update the last few days.
We are beyond thankful for all the blood and platelet donations that everyone has donated. Haylie was given a transfusion of platelets on Saturday morning. That was her 3rd transfusion in just one week, 2 blood transfusions and one platelet transfusion, and each time there have been an available supply of B- blood and platelets ready for her! I actually received an email from the Carter blood guy yesterday saying the Red Cross has announced a shortage of blood, but DFW is not included in that because of all the blood drives that have been taking place. Y’all that is absolutely amazing and warms my heart! Who knows how many more lives have been saved because of all the amazing people that have been out donating for our daughter. Bless you all!!
Haylie is doing really good! She even got outside to hit Brennen some baseballs in the backyard on Monday. Her levels are probably the lowest they have ever been, but doctors are on top of it. They are expecting her body to start recovering from all the chemo treatments and start to make its own blood and platelets in the next week or two. We are pretty much home bound at this time because her body has no immunity right now. We are praying for her white blood cells, red blood cells and platelets to recover even faster than the doctors expect. Once her levels come back, she will get hit with another round of chemo that will knock her levels back down. This will become a normal cycle for us for the next few months.
Her treatments were just once a week, but after her bad reaction, we now have to go in 3 times a week for shots.
😩.
Haylie is not at all happy about having to get poked so many times,
especially after we thought everything could be done through her port.
She has handled the extra shots pretty well so far. I’m just thankful
she hasn’t had an reactions to the new medication.This is a rough time for us as I feel like we are in the middle of a raging storm. The other morning I awoke to a storm rolling in. The wind was so strong it was pushing against the windows and making creaking noises. Then came the rain. I was reminded that storms in our life can be scary, but God is faithful and is our protector and shelter. The storm brings the rain, which will eventually bring growth and new life. I love the smell after the rain. It is so clean. I think the rain in our lives can sometimes wash us clean and allow us to see more clearly. The storm can tear down a few things, but sometimes that will allow us to see our weaknesses so we can build it back stronger. Haylie is a fighter and she will come out of this much stronger than she was before. God is growing us all right now and I am thankful for that. Jesus bring the rain...
#HealingForHaylie
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| Haylie big catch at camp! |
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| Just chilling in the hospital |
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Thank you Gateway Church for the edible arrangement!
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| Snuggles with Peanut |
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| Waiting for the shots |
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| Brennen won a wheel of fortune game |
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| Peanuts picture made it on the hospital network pets. |
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