Update, Tension

Thank you for all of YOU....our precious friends and Prayer Warriors.  Princess posted last that things were starting out rough for the month of September.  Unfortunately, the trend is continuing and we are reminded that throughout our recent favorable results and even coming off of a good month in August, Princess' journey to full recovery is going to be long.  Each day has its challenges and we have to be mindful to not let is distract and take away from the good that God is doing!  So, please continue to be in prayer for Princess.

The other night was a harsh reminder of the challenges that have faced us in these last nine years.  While making it through Monday with no seizures, Tuesday was in fact different and we ended the day with a seizure that lasted well over an hour and even meant we would have to administer a rescue med to try to break the cycle.  While the med worked in about a hour's time, it was a frustrating and discouraging moment when things seemed to be going well.

While we don't know what to attribute the recent uptick to, we have to continue to keep our focus on Christ and His work in Princess' life.  We have to remind ourselves of the good that He has done and where we came from.  Recently, Princess acquired an infection that we had to treat with antibiotics, then we actually reduced her pharmaceuticals.  Both of these could very well be factors leading to the increase, but nearly a week later, it is exhausting and bewildering.  Additionally, we recently got lab results back that indicate the concentration of her pharmaceuticals in her blood is actually greater (despite the decrease/taper) which means she is "toxic" or over medicated; therefore, possibly creating another link to the increase in seizures....Oh, what a balance.

Please pray for the direction, and the understanding to see what is going on.  Later this morning we are jumping on a phone conference with one of our doctors to consult all these variables and seek what direction to take.

Regarding tension....Sunday at church was an incredible time of worship.  During worship, our worship leader gave us a great reminder of how God can actually use our situation and compliment our situation despite the chaos or tension that is sometimes present.  Very often we think that when bad happens that it must be the work of Satan himself, surely not our Almighty and Loving God.  But is this really true?  No!  God does allow things to be a part of our life that may not seem pleasant or good.  We  have certainly seen this first hand.  So this past Sunday, our Worship Leader reminded us of a term called dissonance.

What was illustrated and played out for us was the reality of a harsh and disagreeable combination of just two notes on the piano.  The the painful combination played out, lingered, and created tension in our ears and mind, the leader reminded us that sometimes that tension is created and persists, but that it takes just a few more additional musical notes to accompany the then created tension to create great harmony and comfort.  Wow!  What a great illustration!  So while we feel tension....while we see the chaos that is all around us, we seek God to compliment the tension and to make beautiful music of our lives to bring glory to Him and to  Him alone.

So, thank you for your prayers for Princess.  Thanks for being part of our journey!  We look forward to sharing more in the coming days!