And He said unto me, "My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me."
2 Corinthians 12:9

Sunday, May 3, 2015

Troubles



It has probably been too long since we have posted.  Truth is, we have been very busy like everyone else, and there has really not been too much to communicate regarding Princess' seizures.  That's been a huge PRAISE!!!  We ended the year on a fairly good note with Princess trending downward close to an average of approximately 1-2 seizures per day.  This year nearly started as well, with the last week of February presenting an exception & quite a challenge, with a significant increase.  For the most part March, calmed as we rolled past our 9 year anniversary of Princess' illness.  9 YEARS!!!

However, in the past two weeks, all that has changed in just the last 10 days as Princess has had over 60 seizures!!!  Just in the last 3 days, she has had over 30. In three days we have also made three separate trips to the ER with the third taking place today after Princess had 7 seizures in a 2.5 hr time span.  Unfortunately,  as most of you know, Princess' case is very complex and we are truly at a point where facilities in our area do not have any answers nor know exactly what to do.  Today has been incredibly frustrating as we rushed to the ER after 7 seizures, had 4 more in the ER, but have not received any treatment.  Sadly, we are even still awaiting to be connected with a doctor that would oversee Princess' care, though we have been moved into the Hospital from the ER.

Please pray for our direction.  We are truly at a place where we need to be nearer to an epilepsy center where Princess can receive the best possible care for her illness.  Please pray that we and the doctors and nurses involved can have effective communication and that most of all, Princess will be healed from this awful illness.

Thank you!
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1 comment:

  1. EmilyMay 5, 2015 at 10:58 AM

    I'm so sorry to hear of the increase in seizures again! I cannot imagine how hard it is to endure what yall have been through for 9 years! I just wanted to pass on some information about a doctor who has worked with patients with various types of diseases that involve neurological inflammation. She is a PhD who has focused on the methylation cycle and genetic mutations in the genes that control it. She has worked with patients who have seizure disorders. She has had amazing success with her patients in ways that no other doctor has! Lately she has focused on children with autism and has "cured" many of her patients from it! She had a 5+ year waiting list because she had so much success. Now she doesn't see patients in a traditional practice anymore. She publishes her protocol, research, findings, etc. for anyone to use. Her approach is through nutrigenomics - giving your body the specific nutritional support (mostly supplements and some diet) that it needs to address your unique biochemistry and genetics. http://www.dramyyasko.com/ She is located in Maine, but works with patients remotely all over the country and world. She has a forum where people who are using her protocol all communicate and one topic is positive feedback where there are stories of success for patients with seizures. http://www.ch3nutrigenomics.com/phpBB3/search.php?keywords=seizure&fid%5B0%5D=10 I hope you will find help in this protocol or other steps as I know your suffering has been great. Prayers for yall! Emily

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