We went from Urology to Endocrinology, back to Urology, to Cardiology, and then finally Hematology- just to give you a glimpse of our journey yesterday. Most of our appointments were consults and opportunities to gain more insight into a very complex case. We generally look forward to these types appointments and enjoy the learning that can come from them. While a great deal of learning was done, we did have a bit of frustration this morning as we began as one of our consults proved more to be how much the doctor could prove we could be wrong as opposed to a colleague prior to the actual meeting was more than impressive in gaining insight and educating us. While this particular appointment was frustrating, it was just one appointment of the day, and did not dictate the rest of the day for us.
Yesterday's big appointment was actually with Hematology. From this appointment we were better able to understand Princess' iron deficiency anemia and how we would continue to treat her. We greatly appreciated their teaching approach but more importantly, their desire to listen to the patient. This typically is the case with most of our Mayo appointments. I think that is one of the things that has stood out about our whole Mayo experience.
From the Mayo Clinic's Model of Care:
An unhurried examination with time to listen to the patient
At Mayo Clinic, we treat a whole person rather than an isolated disease entity. We recognize the additional time it takes to listen to patients and assess their needs in order to make sure that everything possible is done to provide quality care for our patients.
While we didn't get any "ah-ha" information or new links to Princess' seizures, we did find great value in furthering our education and learning so much more about our complex bodies.
We have many more appointments today before we head to the hospital tomorrow. Our prayer is that much can be accomplished today. We are also trying to figure out the details of our hotel. We don't know how long we'll be in the hospital and so we don't know when to tell them we'll check back in...we are praying that they might allow us to just leave our stuff in our room, since the hotel isn't full, but not charge us (wishful thinking? Yes, but God can do big things). Otherwise, we'll need to repack everything and put it in storage here at the hotel and then borrow their fridge for all of our food!
We are also praying that many of the scheduled appointments can be rescheduled as they are planned during the hospital admission which means we couldn't get to them. So, many details need to be worked out today. Please, Lord!!
At Mayo Clinic, we treat a whole person rather than an isolated disease entity. We recognize the additional time it takes to listen to patients and assess their needs in order to make sure that everything possible is done to provide quality care for our patients.
While we didn't get any "ah-ha" information or new links to Princess' seizures, we did find great value in furthering our education and learning so much more about our complex bodies.
We have many more appointments today before we head to the hospital tomorrow. Our prayer is that much can be accomplished today. We are also trying to figure out the details of our hotel. We don't know how long we'll be in the hospital and so we don't know when to tell them we'll check back in...we are praying that they might allow us to just leave our stuff in our room, since the hotel isn't full, but not charge us (wishful thinking? Yes, but God can do big things). Otherwise, we'll need to repack everything and put it in storage here at the hotel and then borrow their fridge for all of our food!
We are also praying that many of the scheduled appointments can be rescheduled as they are planned during the hospital admission which means we couldn't get to them. So, many details need to be worked out today. Please, Lord!!
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