Update

Thanks to many of you that have faithfully checked in on us and have been asking for an update to the Foxhole.

A couple weeks back, we celebrated  Princess' birthday!  Although she was not feeling her best, we did have a nice week celebrating her.  Through our best attempts to celebrate, we did have more appointments with multiple docs trying to address a lot of the secondary symptoms that Princess is experiencing.  Through the course of doing her lab work, her results came back that she is severely anemic and her iron counts are devastatingly low.  This might explain some of the secondary symptoms.  Additionally, the docs have also advised that truly the only option remaining for Princess at this time to address her seizures will have to be the chemotherapy/immuno-suppression.  However, due to the lab results, her anemia has to be addressed.

This past week was more of the same, new appointment, new doctor, similar results...

Frustrating as it was, Princess was and is, still battling through her days having multiple seizures per day. While the seizures themselves seem to be more debilitating, she is incredible!  Her tenacity to get through each day and make the most of each moment is something that is to be admired.  We were able to get to the hospital on Thursday this past week to begin doing an Iron infusion.  Literally, iron is supposed to be infused into the vein so that Princess can hopefully begin producing "good blood" and jump-start her body to then hopefully reduce/eliminate some of the secondary symptoms.  Thereafter, we'll hopefully be able to begin addressing the use of chemo for the seizures.  While as simple as this may sound, unfortunately, Thursday's trip to the infusion center did not go well as through literally 6 separate attempts and blown veins, a horrible seizure, we left not able to receive the iron and were very frustrated by the overall experience and overall lack of care.  It truly was a very disappointing experience that we are still trying to wrap our minds around.

So overall, the last few weeks have been exhausting with more doc appointments, more unknowns and new challenges.  BUT, we are grateful for your continued prayers, friendship, and support.  While God is carrying us, you are walking alongside sharing in our burdens and our life.  Thank you!

Note that we did have some fun moments this past week and will post pictures later of a very fun Halloween!  Old Cars!  Wolves...