Update from Home

Well, as you know we are now home! It truly was a special sight watching Critter give out her hugs at church. More importantly, we are so grateful to be reunited with her after two very LONG weeks at the Mayo Clinic.

As a recap, we originally were supposed to have come home after a week. However, we were not able to complete all of our testing, so we elected to stay through the weekend to complete our tests on the following Monday. We woke Monday, but rather than heading to the clinic for M's test, we actually headed to the ER as M got a nasty stomach bug and needed medical intervention.  After receiving treatment, we were discharged from the hospital late Monday night and figured that we would try to complete her tests on Tuesday- still desiring to get home!

Tuesday seemed to go well as we were able to complete one of our two tests first thing in the morning. Around 2 o'clock that afternoon, while waiting for the second test, M experienced a short moment where she could not breathe...which was followed by perhaps her worst seizure in 6 years.  The docs were very concerned and elected to immediately admit her and begin one of the proposed treatments as opposed to waiting to start once we were home.

The docs had to give M an injectable dose of the rescue med because her seizures wouldn't stop at this point.  She ended up having ten for the day before the rescue meds took affect.  Then, the docs started M on heavy duty IV steroids daily to suppress her immune system.  We experienced favorable results (no seizures for three days) and were finally discharged late Friday afternoon.  We immediately caught a flight home that night to get to our girl.  Likewise, Saturday was great (at home with Critter).

However, things changed Sunday afternoon as M had a small seizure. Trying to put the seizure aside and not allow it to be a distraction we went into the start of this week ready to be working on a cure.  However, Monday was filled with eight seizures by the time we turned the lights out and called it a night!
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YESTERDAY...Heading into this week back at home, we scheduled to have a follow-up visit with our neurologist to discuss Mayo and treatments going forward.  But, starting out yesterday morning, M felt that something was not right.  She did not feel well.  She did not feel like herself.  Our appointment was in the late morning and by the time we arrived at the doc's office, Meredith could barely walk, could not talk, and was very lethargic.  As she put it, existing was quite a chore.  For the second time, M's situation became very, very scary and intense.  The doc was not too sure what was going on and M was not responsive to the doc's questions or neuro test.  It was at that point that the doc wanted to admit M into the ER, run labs, and start fluids.

Upon arriving in the ER, M had an indescribable experience that was by far, the scariest moment for us in the last 6 years.  M later was back to herself and we were discharged and sent back home.  She had four seizures yesterday.

SO, today we are settling in at home trying to get organized (that's for you Grandpa) and caught up on life from the last two and a half weeks.  M is still not feeling well (she's already had four seizures).  We began our day with God, spending time in His Word, prayer, and Rest.  Putting one foot in front of the other and walking in FAITH.   

Lord, we pray for STRENGTH, PHYSICAL PROTECTION, and continued HEALING.