The weekends always seem tough. We hustle and bustle through the week filling our time with meaningful tasks and appointments, but the weekend....it's calmer. It's not as busy. But, what it is, is an open door to reality. Like many of you the weekends are a time to connect as a family. Get items and tasks done that we may not have had the chance of doing during the chaotic week. And yet again, for us, it is a tough wakeup to reality. We are nearing the 6th year of M's illness. You can only imagine how tired she is, yet she manages to continue to put on joy each and everyday. She pushes herself to not let her illness stop her from experiencing life. I admire her so much.
Today we were taking part in what has become our routine Saturday donut run to Shipley Donuts. YUMMY! She asked me today are peace and having a feeling the same? Is there a differnce?
We know that true peace comes from Jesus Christ himself. We know that God as remained faithful to M and preserved her. Yet, how do you have peace and contentment when there is so much around you that says intimidatingly, you are limited by what you want to do. M just wants to be a Mommy.... M wants to be a wife.... During the week it's not so bad....M is able to occupy her time. If she has a bad day, which seems to be much more frequent, she can "get away." When she has a good day, praying for more of those, she can do things that allow her to feel productive and like she is a mommy and a wife.
So how do you have peace? How do you have peace when you know that you're not physically right? We know that God has a plan for our lives. Jeremiah 1:5 says that "Before I formed you in the womb, I had a plan for you..." But seriously, is this your plan? I am thankful Lord that you have protected and provided, but it sure feels like I am drowning....HELP!
Hope....Our hope is in Christ.
We hope for things eternal. We hope for a healed life. We hope....
Many of you continue to pray for us. Thank you! You have been praying for healing. How do you continue to hope when each time you hope for something it is totally taken away? Again constant reminders of our limits.
So this weekend has been tough. Tough like most weekends.
Needs: Please pray for God's provision of a Nanny. We have met with and visited with many that would be great, yet the Lord has not quite introduced us to the right one. Keep praying and seeking. Just in case you have someone in mind, we are needing someone Monday thru Friday 9-5.
Pray for our visits this week with our key doctors. We are trying to figure if getting back to the Mayo Clinic is in our immediate future or do we begin with some new treatment options here at home.
Thanks for reading and your encouragement.
The Foxhole
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Praying for you guys!
ReplyDeleteI understand how you want things to be normal we all take so much for granted until something goes wrong. God has this all under control but some days are just harder than others.
Caleb is 100% better than we were last summer but our lives are not back to normal. Since treating his POTS with milodrine, florinef and now ddvap at night plus all of his wonderful supplements from his iridologist his seizures are gone. A miracle. The only thing that is left is a few episodes a month at night that are different than what we ever seen some of them can be violent and he stops breathing 30-40 seconds. His cardio still believes this is a mitochondrial disease. If he has a bigger day one day it takes him a few days to recover. He misses school so much.
Praying that we both get more answers to help take these episodes completely away.