Welcome to the Foxhole!

Since our last post M has had another treatment.  We began receiving three treatments in the hospital. Then, we had our first of twelve home health care experiences as M will receive treatments every week at home until we go back to Mayo for our follow-up sometime in August. 

So, what to expect?  Well, we for sure were hoping that we would see results immediately.  Based upon Mayo’s description, it seemed that we would get to see changes very soon.  Unfortunately, that has not been the case…since M has begun treatment her seizures have continued to increase even more than they had post-pregnancy.  While we are not sure about the time it should take to respond to treatment, our Neuro here in Dallas indicated that we should start seeing results around the sixth treatment.  Lord willing, she is absolutely right.  M is quite tired and exhausted from her now nearly 6 seizures per day.  The other difficult experience has been an extreme migraine.  While two full treatments have been completed, M has come from each with a migraine that has lasted at least three days.  Couple that with a crying baby, and well you can probably get the picture.  Please pray for peace, that we would begin seeing results from M’s treatment, and that she would not experience the painful migraines, post infusion.

Lastly, please join in us in prayer as we continue with M’s treatment each Thursday at our home.  Our first experience lasted all day when it was only supposed to last about four hours.  Not all of the supplies were sent and if you can imagine, at one time we had three nurses in the house trying to get a line in M.  Thus, we did not begin treatment until five hours after the first nurse arrived.  We are praying for a much better experience this week. 

Here are some pics of the amazing staff we had at Baylor and as well, a spectacular exhibit of molded and cast hands.

M wearing the shirt that I wore to every single chemo appt. that I had...

Dr. Suess' hands

Billy Graham's hands

One of the walls of hands...M used to look at these all the time, as a kiddo, when her Granny & Grandaddy were in the hospital.

The hands of the Mayo brothers: the ones that started The Mayo Clinic

Sweet staff at Baylor for the first round of infusions....

Please stay tuned as we have an exciting announcement that will be shared on Thursday (maybe sooner).  We can’t wait to see what God is going to do and share it with everyone.