Update:
Yesterday and overnight have been very eventful. First off, regarding
the MRIs and other scans and what we know for sure up to this point:
Nate has a very active brain right now that is causing things to go on
all over his body that the ICU doctors have been trying to find how to
correct. The two main concerns right now in the eyes of Dallas are the
constant seizures he has been having both seen and unseen and his blood
pressure along with heart rate staying so high. As of right now, because
things could change instantly throughout the day, both are finally
being controlled they believe. To get both of those under control has
been a huge fight. Nate has been put on multiple meds of extreme amounts
to make that happen and though so far that has worked, the body can't
keep getting that amount of meds just to stay within functioning range.
Second thing, we know from the scans that Nate has a lot of excess water
in the brain that is not being absorbed and circulated the way a normal
central nervous system would do. The ventricles in his brain are very
large right now. When looked at here in Dallas the reasoning is
degradation from a source that can not be pinpointed. In other words,
might be tumor that is not located, might be past treatments, might be
the seizures, and might be that the brain is just plain wore out. The
radiology findings here read very vague and general and not much can be
learned from them. The great ICU department here in Dallas is trying
desperately to help Nate get to Los Angeles because the oncologists and
the brain team here have decided that he is not a candidate for anymore
treatment or procedures that may or may not correct the situation. This
is where Los Angeles and Drs Finlay and Brown come back in. We have been
down some hopeless looking roads before with these doctors and so far
they have done more than could have ever been expected. We would have
definitely been sent home almost anywhere else and quite possibly
everywhere else so words can't describe our gratitude to them. We also
want to make this clear we do not feel negative toward any other
hospital, institution, or doctor out there...so many people in Dallas,
Ft Worth, New York, Duke, Seattle, and Denver have agreed to help him
before and gave it their best effort and attention at one point or the
other...Nate is a very complex case and not much has made sense over the
years and the most logical thing to do was to just stop. We as his
parents and his doctors in Los Angeles have without a doubt pushed this
thing further than advised or the range of the normal range of comfort.
The reason has always been because God has allowed Nate to stay very
strong through all of this. No doubt that Nate in the world's eyes
should have been dead a long time ago. Even his LA docs and me and
Jackie are amazed at what God has blessed Nate with. Why? I don't know
except to keep giving the praise to God.
Yesterday afternoon I
overnighted the MRIs to Finlay and Brown. They have been talking
extensively with the ICU doctors here in Dallas and the cooperation has
been fantastic. LA will review the scans sometime today very thorough
and include anyone that might help them further to decide whether or not
there is a sliver of a chance that anything more can be done. As
optimistic, out of the box, and cutting edge as they have been, Nate's
best interest is always paramount and these doctors genuinely love
him...we have literally spent hours and hours with them through the
years and this is more than just doctor and patient. We as his parents
and they as his doctors and friends will only proceed forward if it
makes any kind of sense. We want God's will to shine here and this
decision to be made with the wisdom HE has given all of us...both them
and us...these are God fearing men and acknowledge that much more than
just what they have done had kept Nate alive. Please pray for them, us
as his parents, and for Nate. We want God's will to be done. If after
careful consideration, thought, prayer, and research then the decision
is no more then the ICU here will stabilize him and we go home on
hospice...if the answer is yes, then Nate will be flown in Dallas
Children's medical plane hooked to machines to Children's Hospital Los
Angeles and Nate will immediately begin the next step. This is a big
couple of days and does not need to be taken lightly so when they make
their decision may not be today. They are agreeing to one more chance to
evaluate the situation and discuss with us in detail their decision and
thoughts...that is more than we could be expected...they are truly
doing this out of love. We will post more once we know more...please
pray for all of us. Praise God for HE is in complete control and HE
hears our prayers for wisdom. To HIM be all the glory...thank you God
thank you Jesus!
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