So sorry it has taken so long to provide an update. Clearly, I have not learned to juggle the demands of being a new parent with the basic demands of life. Thank you all for your love. It has been so precious and touching to hear from so many people wanting updates!
I will do my best to quickly update you on all that has occured...
This is us leaving Children's Hospital after P's one week stay.
She is doing much better. The outfit was what we purchased when we found out we were having a girl. It was the perfect outfit for many reasons. However, it was a preemie size and so we didn't even take it with us to the hospital when she was born. We just thought it would be special memorabilia. Well, since she's so tiny, she still fits in the outfit! Daddy and P also matched quite well!! ; )
Headed to her first doctor's appt.
Stop taking pictures of me!!
At the doc's office.
Can you see her cute onesie? Her cousin, Kristiana, made it for her!!
P's first outing...all snug in the Moby Wrap.
We had to go to Whole Foods for her first outing after the doc appt.
to get some of the food that I have to eat.
Snuggling with Daddy!!
P & Daddy got to have some good time together last week, as I was in the hospital. I had a migraine that kept getting worse on top of being in ketoacidosis. It is very normal (and actually desired) for me to be in a pretty deep state of ketosis due to the treatment for the seizures. If I'm not in ketosis, I tend to have more seizures. However, this kept getting worse and all of the prescribed treatments for getting out of ketosis weren't working. The final treatment recommended by Johns Hopkins (the hospital doing all of the research on the Ketogenic therapy) is to go to the ER and get a bag of glucose. My doc called it in...however, the ER was far from cooperative. They refused, despite us bringing in the literature stating that this is the appropriate treatment and my doc ordering it. However, they said that I had a UTI and mastitis and that my potassium was low. Thus, they admitted me.
It was a crazy experience and one that I prefer to not repeat. Mom and a sweet friend of hers came over to the house while I was in the hospital to help with P as B had to get some work done. Then, B brought P to the hospital where the lactation consultant tried to teach her how to eat without biting me and drawing blood! Didn't work...she still bites hard.
My seizures have picked up a bit and I'm very confused and disoriented when they are over...we're trying to uncover the reason for the increase and the change in intensity.
B travels once a month to Texarkana to see some clients for a few days. It's usually a great time for me to get a lot done around the house. However, with all of the seizures I am having, I wasn't comfortable being left alone with Miss P for three days. So, Mom is watching the house and the dogs and P and I came with B to Texarkana. Please pray with me that we can quickly find an answer or that the miraculous healing will occur!!!
P discovering her world!!
Even in the womb, she always had her hand by her face!!!
Deep thoughts with Daddy!
More to come...