Today was a pretty good day. We started with being able to get my EEG done this morning, rather than this afternoon. This will hopefully allow the doc more time to read it and it opened up the afternoon to accomplish more...
Then, we met with the autonomic specialist, the guy that deals with POTS. This was my least favorite appointment. He was quite rude and asked me to, "prove it," many times in our meeting. This was in reference to diagnoses that we have received from other docs. Anyway, he had me in tears and I asked him to please stop treating me the way he was...he didn't. So, I left the room. Ben stayed in with him for the next hour and a half and shared my medical history. Basically, he didn't believe everything that we were saying that is so rare...he didn't read my file before he came in the room. Every other doctor has spent over an hour reading my records. Once B told him that we had exhausted every option in Texas and that even our docs in Texas said that they had never seen a case like this, he apparently changed his tune and started listening. Then, he read through my chart with Ben and things he had disagreed with me on...he read written in my chart and seemed to understand finally. His excuse to Ben about his attitude is that he is "a New Yorker..."
We left there and I had an echocardiogram done. They can't use the ultrasound gel on me because it triggers the seizures. So, we had to get creative. She actually got a cup of water and gave me a bunch of gauze. I literally laid there squeezing water on to my chest the whole time she did the scan. It was interesting, but it worked!!!!
Then, I had my MRI done...we met a sweet couple while waiting to be called back for the test. While I was in the test, B was able to get a little work done. Then, he had a chance to speak with this wife. Please be in prayer for them, Diane & Doug. He has been diagnosed with Lou Gehrig's disease. They are hoping it is an inaccurate diagnosis. She is also a cancer survivor like B! So, it was a special connection! Please keep them in your prayers!
Then, we went to each of the appts. that I have scheduled for the rest of the week and tried to rearrange them so that we can leave on time Friday. The praise is that we were able to move my appt. with the cardiologist next week, to an appt. tomorrow morning!!!! So, now, the only appt. that is out of the way, is the neuro on July 15th! We are hoping to get that changed tomorrow. Otherwise, we will need to fly back up here for that appt.
We met a precious family here through one of B's clients. The hubby works at Mayo and they have been precious to offer anything that we might need. We were running low on lettuce for my salads and she went to the grocery store for us and not only blessed us with lettuce, but she also bought some yummy snacks for B and she brought me a rose. : ) Her oldest son (12 years old) was with her and he was such an impressive young man!!!
Finally, we decided to go sit outside the hotel and rest. On our way out, B stopped in the coffee shop here. A guy walked up behind us and said that B looked familiar and asked for his name. Turns out they were in the Corps together!!! There sure are a lot of Aggies in Rochester. Anyway, he is doing his residency here and so we got to catch up with him, too! Such a small world!
Now, we need to get to sleep since we only slept four hours last night b/c of my EEG.
Please be praying for:
- Our appointments to flow smoothly tomorrow.
- For our disc to arrive from Houston
- That the neuro will have time to view the disc & see us before we leave town on Friday. It would be great to not have to come back up here in two weeks.
- We have one appt. that we are trying to get moved from Friday afternoon to tomorrow or Friday morning!
- That the docs will be able to uncover the cause or a solution to all of this.
- That our sweet baby will continue growing into a healthy little baby!!
- That we will be a shining light for the Lord while we are here.